Helga

Your Replies

  • Helga
    September 15, 2007 at 7:48 am

    [quote=tofraljos]Im getting of the Lyrica and taking neurotin, and for me it is a relief, why Im awake for long time, I got so sleepy of Lyrica, but yet Im not on same level on the neurotin that is im only taking 900 mg and I have bad pain when Im walking more then few meters. But my apertide have are not as much as it was on Lyrica, I think we all have diffrent side affect of each med. But for me neurotin is better, less water on my feet, feeling much better in my head 🙂 and that is sure good[/quote]

    well I though it was 100 mg per capsule but it is 300mg and Im talking 4 in the morning and 3 in afternoon and then 4 in the evening.. no wonder Im feeling good. im talkin there for 3300 mg per day. not 900mg. *LOL*
    xoxooxoxo
    Helga

    Helga
    September 15, 2007 at 7:43 am

    Hi and welcome, this is good family around here.

    Helga
    September 13, 2007 at 3:25 am

    yea Im going to put some update here. Went to my rehab to be check how I have been doing. And it turns out my feet are stronger YEEEE, but my hand are almost the same little better but nothing more. I have gained about 60% of what I used to have of strenght. They say practice and execise each day to use your hand and feet.
    They want me to go to swim at least 3 times a week and work out in gym 4 times. I know it sound crazy, I work at my candleworkshop at least 2 -4 hours a day, so it dont leave much time for both swiming and going to the gym and take care of the home and the family. Well I would say this was full sceadule for people that are in very good health 😀 I dont see me follow this up, either is it swim or gym not both on same day.
    I asked again what they thought about me getting more feelings in my feet. and they think it will not come much from now. They did some test with tuning fork, I did not feel much from knees and down. but I walk and I will get over this pain I have in my feet, I have got over bad pains with that just tolarete them until they get normal for me. That is how I have gone through my back pain, so this will be the same. bad in the morning and evening, but ok while Im on the move.

    Helga
    September 10, 2007 at 3:24 pm

    I talk to the therapist too day and he felt very shamed over how I took this and told me that I should not notice all he was saying and apology too me. Well I was not very satisfied with it and he was very sad over this. Maybe we know each other too well, he has been my therapist for 4 years. But that don’t change that I will print out lot of articles for him about GBS and let him have next time I will go to training. And let him read about GBS and let him understand if he cant read that then I have no time to waist in useless therapy.

    Helga
    September 9, 2007 at 4:23 pm

    easy does it.. that is the only thing you have to remeber, we that are recovering have to listen to our body, we are so easly overdueing our self.

    Helga
    September 9, 2007 at 4:19 pm

    Im getting of the Lyrica and taking neurotin, and for me it is a relief, why Im awake for long time, I got so sleepy of Lyrica, but yet Im not on same level on the neurotin that is im only taking 900 mg and I have bad pain when Im walking more then few meters. But my apertide have are not as much as it was on Lyrica, I think we all have diffrent side affect of each med. But for me neurotin is better, less water on my feet, feeling much better in my head 🙂 and that is sure good

    Helga
    August 29, 2007 at 10:01 am

    well I have problem remembering words, and also saying wrong words, I cant find words in my head it is all stuck somewhere inside. and in afternoon I’m so tired all the time need to lay down in the middle of the day to have some energy in the afternoon. I have to cook in the evening and that is more enough for me sometimes I just cant. I feel so wast-less.. I don’t understand how my family tolerate me so lazy.

    Helga
    August 29, 2007 at 9:53 am

    Im still on Lyrica and take 675 mg per day, tryed to lower the dose and it made me feel terrible, back to my 675mg but are going to go on neurotin insted, Lyrica makes my appertide get too high, when I was on neurotin it was not so. Im also dealing with lot of water swelling in my feet, does any one else have that.
    xoxooxoxoox
    Helga

    Helga
    August 26, 2007 at 4:11 am

    I have not stooped smiling Ali, but sometimes the feeling of not being able to do little better is driven my crazy, but that also help me keep me on the toes looking for improvements. Like some of my friends say you are a [COLOR=#8425a7][COLOR=#000000]perfectionist about me, and I think that is my main problem, I don’t like people to see me stumbling around.:D [/COLOR]
    [/COLOR]

    Helga
    August 26, 2007 at 3:59 am

    get a speacal soft clay, and with this clay is instroctions how to use it and lot of exersices when I find it, it is somwhere in my things that I have not still unpacked since I came home from the rehab. this clay helped me alot when I was haveing difficulty in my hand, and I still does some of the exercise with out the clay like streching out the fingers and put theim together.

    Helga
    August 26, 2007 at 3:54 am

    I stoped smoking when I had the first symtoms of GBS and stay that way in 3 months then I got bored at the rehab center and whent down where all the fun people was staying and started again, then the doc at the rehab gave me a med that was going to stop me, it name is Champix, and it worked but it also increasted my symtoms I got all numb and could hardly walk, so I dont think that is right med for people with GBS at least when it is recovering.

    Helga
    August 26, 2007 at 3:44 am

    the site affect of Lyrica is gain weight and lot of appetite, I’m on lyrica and are changing to neorotine again, I felt it when I started on Lyrica how my weight got up, and the doctor at the rehab center did not listen to me, and I got now my doctor that I had when I was dx and he wants to pull me out of the Lyrica because the first site affect is gain weight, but it is many other site affect with lyrica, and more it is working on you more site affect you get.

    Helga
    August 23, 2007 at 5:09 pm

    well it is long time since I have given you any update on my recovery.
    I went to the doc that treated me at the hospital, before I went to the rehab. It was so good to see him, well he give me more months to gain more right feelings in my hands and feet, but he told me also I should be be paired that maybe it is as good as it get. He told me to practice and practice both with my hands and feet and gain more strength and I would be able to loose the crouch but maybe the burning and this strange feeling I have in my feet will be there, but I would get used to it. Yea since I got home and my improvement in the this tightens and burning and tingle in my feet did not show, I was afraid this would be result, but I’m not one year old since I was onset of GBS so I still have hope don’t I ?
    my cramping hands when I hold telephone to my ear, he thought was something I would just have to live with, it was just wrong message that my head was sending to my hands, so my shaking hands are my signature from now on:D not bad.. some hubby would say so 😀 Hope every one is doing good, and I will try to read some post over the weekend and see if I can help some one with their problem, at least give them hug.
    love you all my dear family here, I don’t know how I would have survived my GBS if it was not for you all. You gave me bravery and hope.

    Helga
    August 20, 2007 at 11:29 am

    I have been notice I have shakeing hands, if I talk in my phone my hands start to shake and I cant control it, and it is less in my left hand but it seems if Im doing things that I have to hold my hand steady then it start to shake, it minds my of MS pathient that cant control their hands.
    Does some one have that residuals?

    Helga
    August 20, 2007 at 9:01 am

    Im sorry to hear about your mother, yes she is a hero and please try to find another doctor, well my doctors was sure I would not walk again, well Im on my two feet and it is not year since I was DX but it take time, the time and rest is our best healer. Send hugs and kisses from Iceland, love Helga,
    ps I will have your mom in my prayers

1 2 3 … 7 8 9 10 11 12