Helga
Your Replies
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October 10, 2009 at 1:04 pm
Carolyn, yea life is tough after going through this all but we survived and we are strong, your boy´s do not get GBS this is only we self that are in this we dont send it over to our kids.
What life is today is good, every day is good, we know what we lost and what we have gained again. We are not perfict but we are here. We need to rest more we worried if we get GBS again, what if we get swinflue, or vaccine, well that is all what we deal when it comes and if it comes. we need “to take one day at the time”. That is very importand becouse other wise we drive our self and our family insaine.October 10, 2009 at 12:08 pmI stoped taking lyrica, and are now on gabetine or nourotine, that depends what drug are in awaleable in the country. I gained lot of weight during this lyrica time that I had
October 10, 2009 at 11:53 amD.U I understand what you are going through, I cant remeber names, and faces are in fog, Im member in mobilehome owners here in Iceland, and I cant remeber any names or faces, I started in this memership after I got GBS, and before I had good memerory of who is who, but to day I try to stay in very little group becouse it hurts to not knowing faces or names of people every one think you should know. My hubby dont understand this loss of memory, and I just have stoped exsplaining this to him. It is so good to see that you are not alone in this, and thank for this great messagebord it have help me alot 🙂
Thank you all for being here 🙂September 9, 2009 at 10:23 am[quote=luv2sail]My doctor says not to go near the swine flu vaccine, since I have had GBS. Also, I noticed on the web that 2 days ago the British equivalent of the CDC alerted British doctors to be on the look out for an increase in GBS due to the new vaccine, and report all cases so that they could document a cause/effect relationship, if one shows up in Britain. So someone is watching this vaccine![/quote]
I have heard from people that live in Isle of Man that increesing GBS pathient after the flu shot.
The doc here in Iceland that is over the antisepsis, says that GBS is very common illness, and not live threating..hmmm I thougt wooo, when I got it we was 4 in whole year that got it and they said it was lot becouse there was many years since last case of GBS had been in hospital here.
So getting flu shot is safe here in Iceland, what a crap. I know that Im on a list to get this shot, becouse of my diebet. I dont know what to do, I know it is live threating for me to get this flu but who say´s Im going to get it.
xoxoxoxoxo HelgaSeptember 9, 2009 at 9:55 am*LOL* I know what youi mean and I thought this was just me, saying wrong words and thinking right one, and I feel even I have said things right. I loved reading but now I read one book in one year. strange yes and nobody belive you when you say this. If I dont want to sleep over the tv, I play game on the puter and listning that I can do.
my hubby feel it funny how unluck Im with words somtimes, and some day he can laugh all day long of my “great phrase”:D and me too. Im learning that somtimes you need to have good time over this, and this is just me today:D
xoxoxoxo
HelgaMay 8, 2009 at 7:24 am[quote=jeff] Finally, I am doing better-two weeks with the pain under control and no side effects. Jeff[/quote]
It is good to hear, for me this is good news, I have this burning feet all the time and neurotin stil can sooth some of the pain down but not all. every one say to me this will get better, in this two years from I was onset, they only get worse. but Im trying to awoid as much as I can to take more meds at the time. Im now on highest does on neurotin and I hope and pray this will get better. But I hear that there is a way to be with out this pain, and if in next 5 years I will not get better then I have way out:)
May 8, 2009 at 7:18 amI was reading about this Oxycontin and if you take Lyrica dont work well together. I cant exspain it in english but if you are taken other meds that is working on your central nervous system then you can get more sleepy and more tierd.
May 8, 2009 at 3:59 amThanks for that.. 😀
March 26, 2009 at 3:47 amI think they all have answer you, I have this problem, but it have all been said it is because I take glucofac for my diabetic, so I have been real patient for it get better, I have added to my diet lot of fiber and it have help lot. fiber take all the fluid in your gastro… and change it, it take time but it is worth it:)
March 26, 2009 at 3:37 amIm one of those that have got it twice, dont worry in my case I was quicker to recover from the secound time. I hope it will be same for you. I pray for you 🙂 and your family
November 16, 2008 at 3:14 amFor me it was the believe in some higher power that would not let me down, I have gone through rough part in my life and this was not the worst one. I knew in my heart I would beet this I’m not used to loose in my life and this was no time for loosing for some stupid GBS. I have today wonderful husband that supported me all the way through this, he was sometimes given up hope I would walk again. But I have strong willpower that have brought me through rough life and it was good at this moment that I never gave into that feeling this was over. Today I’m still struggling with weak feet and lack of reflex in my arms and feet. but all take time and I know one day I will be OK. I dream about it still like I dreamed about me being walking while I was paralyzed 🙂
November 16, 2008 at 3:00 amI would think so, and I hope so, I have this too, and somtimes it stop my in working and I feel this usaly when Im tierd, but that is not allways the case, what about you?
xoxoxoxoxo
HelgaNovember 16, 2008 at 2:59 amYes this is wonderful to hear and keep up good work, and remeber Rom was not built in one day 🙂
xoxoxoxoo
HelgaNovember 12, 2008 at 7:03 pmI know one that is good today she was with my at my hospital, but she was young 24 years old, it takes time and this napping and resting when you are working is normal, your body is also trying to make things right and we are trying to live normal. I’m tomorrow 2 years old in GBS, and I have stooped to wonder if I will be the same again, it took my many months to stand up from the wheelchair, and I had mild relapse last year, it was because I had pushed my to hard, I run a workshop making candles and Christmas time is my time in work 🙂
You have great respond from others here and I will just say to you [COLOR=red][U]one day at the time,[/U][/COLOR] and then it comes.November 12, 2008 at 6:46 pmWell, we are living in almost closed country today, we cant get any $ or Euros in banks, and we have hard to get things from other countries becouse our Central bank is taking care of who gets to import things and who dont. It is very strange and very stressful, each day you can see it is less and less of imported goods, only food and meds are alowed in importing. I feel that the stress does not do my good so I try to stay away from news and work and work, I still have enough to make my candles and will until in begining of new year. People in the country is very mad and dont know what will happen speacaly after the British goverment put us on terrorist list. We have never used wepon here and we dont even have army, you guy´s was our army until last year. Many people here have lost their savings speacaly older people, and it hurts to see theim having nothing for the those day´s they tried to save too. my father lost lot of money, and he retierd and this was his save way to good life in the old days. one of my son in law lost his job, so it is strange´s and they have their secound baby on its way. My secound daughter is afraid they will lose their house, becouse how the loan is getting higher every day, they say to us the inflation is 20% but how everthing is going up in price I would say it was 50% I know this is maby not the right place to write this but I had to give you a glimps what life in Iceland is today.
