Helga
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August 13, 2007 at 1:13 pm
Thank you all for nice words towards me, Im realy scear still and have nightmares about what is coming, my hubby feel so sorry putting me through this all. But I hope and pray this all goes well. I went to my therapist today and he told me he would aprove me driving. It made my heart happy to hear that. he is worried how much this stress Im dealing with takes to my approvement. He is very good to me these days no presure on exersices only light and nothing heavy.
August 10, 2007 at 2:03 pmSay hi to Steve from Iceland, he has been in my prayer´s
love and hug from Iceland
HelgaAugust 10, 2007 at 1:59 pmWell guy´s, and girls´s Im still here trying to start my buisness, but I have been deeling with lot last few days and I feel my energy is lower and my numbness is more, I cant tell you much what is going on in my live becouse my hubby and I are under very speacial pressure from the goverment it came as much sock to me and the day I was told my legs and my hands started to get some cramps and the numbness went to the hips, I can not sleep much and my appertide is very little, that is also good, maby I loose some pounds:D. Im not loosing my humor and that keeps me up still. What could I do to relax, Im trying to use stilnoct but that only works in 4 hours and then Im awake, I dont take any nap over the day my nerves are to tight up to do that.
hope some one can give my some addvise about this,
xoxoxoxooxoxxoxo
HelgaJuly 29, 2007 at 7:14 amSteve you are in my prayers and I hope you get a bypass real soon, I saw guy´s at the rehab that I was in getting so much better after this surgery so keep up good faith, you will be new guy after this, with lot of power and you will long life after this. Lot of hugs and take [B]GOOD[/B] care of your self
July 29, 2007 at 6:15 am[quote=Chrissy]
Natalie, I used to have acupuntcure and it did help. Good luck![/quote]when in the recover did you have that, I have a PH that is good in it but we have not dare to use it.. he is not very familar with GBS so if I could give him advise when and how he might do this for me
July 29, 2007 at 6:12 amwell my exspirent of pinc nerv and GBS is not the same you get usaly much pain but you dont have much pain when GBS onset you. I started very similar as your wife so get to the ER and get ask and get treatment, it is critical to get the right away,
take good care of you and your wife this can be long road ahead in recoveryJuly 29, 2007 at 5:04 amI have this same about my bladder I dont feel it until it is more then full, and even then I dont have to go, I try to sceadule my have to go, and try not to let more then 4 hours go betwenn going on toilet, but some day I forget it and then it hurts to pee speacaly in the rest of it. and it is very very dark pee that comes. I dont know if I got infection once again, I was geting it over and over again in the rehab becouse if this not going to the toilet so they took me every 4 hours to the toilet, even though I did not feel it that I had to go.
Hope you have good time on your trip, I know Nate will 🙂July 29, 2007 at 4:42 amIm starting to be impatient I want more progress. I still have no real feelings still in my feet´s. and my knees are more and more weak, and my left foot is numb up to hips most of the time when Im walking. My hubby thinks that Im getting ahead of my self. becouse Im so eager to be indepentant and there for Im feeling all this resudant. Maby he is true and I realy hope so. But Im doing good and instead of talk much about how I feel I look forward and try to have each day as normal as I can, exsept Im still not making progress in making candles, so now Im going to do somthing else while im waiting and that is making scrappbooks for my kids and my self 🙂 I think it will be good for my hands to make somthing like that just to get some fine exercise for theim. Tons of love to you all, I do not know how I hade done with out you my internet family 🙂
xoxoxoxooxoxoxoxo
HelgaJuly 25, 2007 at 8:27 pmI’m getting better with walking but still need to use the crotch outside. I would love to say I don’t feel any pain, but that I not so, I have still no feeling for my toes, but if I putt my foot on little stone´s it is like needle, and it hurts badly. But the good thing is I can get into shower on my own, I’m doing all the cooking here home, I wash all laundry, but I think I might be doing more then I should because I’m starting to feel my knees is sometime acting like when I was getting paralyzed and I get numb all away up to hips. But I need to push to get my home back. It is so much mess in so much places. it is normal, my hubby don’t see it with my eyes. well but I’m doing good I cant complain, I stand on my two feet and can use my hands, what more can I ask for. other residual that I still have, I want to learn to live with it and I thank each day for that I’m here and I see my kids grow. I’m now 46 years old, my mom died when she was 52 years old, So I try to love each moment that I have, it was hard lesson when she passed away.
July 25, 2007 at 8:15 pmWell you dont have to go to Spain this year.. I think this is the hotest summer I have lived here in Iceland, it is somtimes so hot in the middle of the day that you take your “fiesta” there is no way to work out in the heat, we have hardly had rain since 17 june, and that is rare. and it is hot all over the country and that is also very speacial.
Big sunshine hug from IcelandJuly 15, 2007 at 9:21 amIm glad you doing so well, It is good to hear succsessfull stories about GBS becouse that keep us in the hope for better recover. I send all my best wishes to you and your family.
xoxoxooxoxoxo
Helga,
ps. I was buying a printer for my candleworkshop from Australia yesterday 🙂July 15, 2007 at 9:14 amIm glad to read this, I thought I was out of my mind last night, I started crying becouse I my thought was I never going to be the same again, now almost 9 months birthday of GBS I still walk on balloons, my feet are numb and tight, still gett numb up to hips when Im tierd, and I have to do my things in the morning the afternoon is out of power most of the time. I got tingles in my hands and get numb when I get tiierd up to my shoulder, I shake when im tierd both hands and feet. And hear me here Im complaining and Im just a junior in this all, I have lot and lot of months to recover and it is going to come someday, I think 🙂 Well I should not let this state of mind get to me, I have been hopful but this was one of these days, needed to get to the store and I did, but I found out I could not carrie as much as I wanted so I bought only what I desprite needed, well that is also a good thing I have more money in the buget *LOL*
sorry guy´s about this rambling just needed to relive of my heart.
xoxoxoxoxoxooxoxxooxoxo
Helga
ps I love you guy´s you are my family when it comes to GBS, nobody realy understand us and how we feel though our family and friends tryJuly 9, 2007 at 5:09 pmIm on blood pressure med and I have been told that I cant go off that .. this is somthing you have for live time. Sorry but as I know best this is just live.. live is a ***** :rolleyes:
July 7, 2007 at 7:44 amWell I progressing to right direction, I walk on my own here home, but my feet are like balloons, and everhting that is hard and get under my feet are like needles, I have little feelings in my toes still, but Im learning to walk and it is getting there. But my feelings in my feet have not change for around 2 months, and Im wonder if this is what Im going to have for the rest of my live, numbness and wool feeling from knees and down. I have still numbness in my fingers but what a heck that is ok.. I dont walk on theim 😀 now Im getting into my 9 month of recovery so I have been losing hope getting better 🙁 But I have set my mind to it if I dont get better then this well then I work from this point and make my live good and stop wonder if I had done this or that I would be better. 😉 Im going to try again to work at my workshop next week, I have been doing what a good housewife should do try to clean up the mess that was made while I was back in recovery, I take it slow and only do one thing at the time, but it is nice to see clean windows and things like that. And I can look at theim and say to my self [B]I DID THIS. [/B]
Well now I have rambling enough for time being.. Hope every one has a good weekend, and rest and take care of your self … as you all know we are one speacal family 😀July 4, 2007 at 9:44 amYes if you live your live thinking of you are relapsing well then we have to think carefully how others feel around us, they smell the fear and see it in our eyes. I have only one time thought it was happening, but I don’t think of it, I take one day at time and make the most of it. I try to have a good day because you never know when something hit you or some of your family members. I think what Teresa Ann said was so true and it was like she was speaking from my own heart.
And I thank from the bottom of my heart having you all here, because you have help me a lot getting my face together and realized that there is a live after having GBS
