Helga

Your Replies

  • July 2, 2007 at 7:51 am

    I have feelt this like others, thinking now Im relapsing or can it be hiting my again. I was on some new med to stop smoking and I after few days I felt my feet numbing up and I could harly walk, I realy panic then and thank god I was still at the rehab when this happen, they took my off the meds and bingo I feelt day after little less numb in my feet.. the numbness was up to my hips, but after 3 days I was just normal, like Im used to be these days, numb up to my knees. It have been like that last couple of months. One question how long was it until you got ca. normal feeling in your leggs after you start walking again, or dont this normal feeling never come again ?

    June 25, 2007 at 7:19 pm

    I thought it would be easy coming home, I almost lost my positive thoughts, it is so hard asking people to help you all the time. I try to do as much as I can but sometimes it is hard because of all the damm pain I have in my feet’s, and I get needles and pins in my arms and leg’s when I have done little bit too much, and that is very common with me I don’t know where to stop. My therapist is starting to understand that I’m not like I used to be and I’m not a stroke patient. So he is going little less on exercise and more to stop my pain with electric and he put it on my this morning and it have worked fine today. Wish I could have those thing in my home, I could use less Lyrica if I had it.
    But I’m doing OK and I’m starting to do as I said before more and more, I can walk here inside with out anything but when I go out I need the walker because of the drop foot I always put my left toeΒ΄s drop when I walk more then 5meters outside :rolleyes: I hope that will be over soon or not.. it depends of if my nerves heal right. who know not me that for sure, but my family believe I will be completely as I was before, but it seems to me few of us will be as we was, we are all little crazy people as we all got GBS and one thing I have seen all people I have talk to is one of those super people that was every where and nowhere, and had lot of smile to give, I think we will have lot of smile to give but being every where and nowhere that is a different story πŸ™‚ well enough of this rambling here, every one take good care and lot of hugs and kisses from Iceland to you all

    June 12, 2007 at 4:04 pm

    Lot of things got into my nerve when I was paralized, and had this terrible pain in feet and hands. and still I somtimes hate my blanket for it is burning my body. And my doctor told my hubby pain was somthing it was rare condiction in GBS. I was not turned over regulari I had to ring for the nurse to do that, and when I was geting paralized in my hand I could not ring for theim and I was geting much pain lying on back, I got then a MND bell to call theim it was only one touch bell and what that feelt good and secured. And one thing that was the bath thing, I got not a bath firthst 2 weeks even thoug I was not in vent. And I felt like I was stinky corp.
    when at last I could sit in wheelchair then I was put in there and yea they wanted me to be in it forever. How tierd I got in it and I tryed to use my hand to roll the wheel to get some one to take me to my bed. and after this I was so tierd.

    Im one of those pathient that have pain and puting on shoes can be hurting, some clothing are also hurting for my skin still, my numb fingers cant do all things they used to do, I hope that will change sooner then later.
    well enough of this rambling take all care, I love this forum it have help me alot knowing Im not alone feeling diffrent from what doctors tell me how I should feel.
    xoxoxoxoxoo
    Helga

    June 12, 2007 at 3:02 pm

    [QUOTE=ali]Oh Kathryn I remember is talking about the hairy legs! Before it all came out in the open, I remember not mentioning it to anyone because I didnt want to seem too vain. :D[/QUOTE]

    I hated this too, lying there every one taking my blanked and watching my fury leggs, and save underarms that was one of the first thing I let take care of when I got to the rehab center and my fury leggs.
    xoxoxoxoox
    Helga

    June 10, 2007 at 7:57 pm

    “not able to feel when i have to go, urgency and so forth”

    Since I had GBS I have to go by the clock becouse I have little and somtimes no feeling when I have to go. I was hoping this would change since Im still on recovery road πŸ™‚ I have not told any doc that I have still this problem since I started to walk on my own and did not have to ask for help. But when I was in the wheelchair I was on 4 hour watch to go. over the night I found that some urine had leak from me and it still do so I use sanitary napkin over nights

    xoxoxoxoxoxoxo
    Helga

    June 7, 2007 at 12:58 pm

    Thanks Cheryl for your post, yes I think I have tendersy to overdue my self. I was with my therapy and he was pushing me and he dont know me well now, he was treated me before I got GBS and he is confused how little I can do before I start to complain and he sees how trimbling I get on my feet when Im doing exercise for the feets. well enough of rambling I think Im going to lay down a little bit for I need to get out of my shoes and socks.
    xoxoxoxoxoxoxo
    Helga

    June 7, 2007 at 8:21 am

    Im with therapyst to gain more power and help me walk right and also get my back to be normal again. I also is learnig to help my self if I fall to the floor. I have not enough strength to help my self yet. I hope it come soon. I have been very hopefull that this will help me gain my strength.
    xoxooxoxoxo
    Helga

    June 7, 2007 at 4:33 am

    I was trying to work at my workshop, in the morning I had went to my therapyst and down some workout exersice, then in that afternoon I went to the workshop, after few min walking around taking up things and then try to make some candle then my feet start to feel like burning and I tried to sit in few min and then start again working then the pain went worse and worse. It was almost unbearable, then my hubby came and told me to get my ass to the bed, it would come another day after this one and then I could do this candles. I know many off you have had a strange feeling in your feet and I remeber this when my GBS started that I could get very hard burning feelings but on the recovery I was so sure that would not happen not so hard pain, I have had pain that is like one or many nerves was pull too but this was diffrent. But from this all Im doing well taking more steps on my own. And insite I can almost walk between room with out any thing, I have always wall to lay to if I cant go further.
    xoxoxoxoxooo
    Helga

    June 3, 2007 at 3:40 pm

    Thanks Pam for your reply, Im going to talk with my PT about this, I get fatigue just siting and take care of guest. well Im just home and I try hard to do things but I have no energy yet. Hopfully it comes around. Thanks again, I needed to hear this I thought maby it was just me that was thinking it was maby little to much of exercises.
    xoxoxoxooxoxoxo
    Helga

    June 3, 2007 at 5:59 am

    I have been reading all the post about outsite PT and makes my wonder if my sceldul will be to much, my rehab PT wants me to go 4 times a week to outsiter PT and also 2 times a week to swimingpool to do my water exercise. and also do my home work to that is doing what I used to do. IΒ΄m a candlemaker and I need to do that as well as my home. I was hoping to do little work each day at my workshop to get it run again. do you think Im over my head ? I walk now with walker and have terrible pain in my feet and my hands, even bigg dose of Lyrica dont cover it.
    xoxoxxoxoox
    Helga

    June 1, 2007 at 6:39 pm

    Hi every one and yes Im home at last 7 months have past and Im still on recovery road. I took home wheelchair, walker and crutch. I hope I dont need the wheelchair much, but for long distance it can be nessesery to use it :rolleyes: My daughter and her babies are here and it is nice to have them around. It seems all so normal. exsept when I start walking and need all this space with my walker πŸ˜€ my granddaughter walks with me and say granny is walking, she realy enjoy it.
    I can take few steps on my own, it is very good feeling. Im going to keep up exercise with local therapy and also try to find a swimming pool that I can use.

    My doctor with out my asking minimezed my Lyrica meds and what a pain Im living up now, told him this morning when he was saying good bye to me that this was too low dooze of Lyrica, he was amazed but gave me prescription for 75mg of it. This doctor is the doctor at the rehab center and he have looked at me like 4 times since I came in for 5 months ago. I have no belive in him, so Im turning to my neuro doc that gave me the IVIG in the first day of my GBS.
    Sorry how it is long but Im so glad to be home again πŸ™‚ wanted to share with you πŸ™‚
    xoxoxoxoxoxo
    Helga

    May 27, 2007 at 10:10 am

    I lost around 40 pound, I lost all apertide and all food was like metal, and I drink lot of water it was the only thing I feelt good to drink.. and not cold water. this lost was on 2 months that I was at the hospital, and then more went when I started the rehab, but now my weight is stedy, but I hope I loose more πŸ™‚

    May 27, 2007 at 9:45 am

    Well I’m going to start my last week at the rehab on Monday. I’m feeling OK, I can walk few steps on my own.. but I’m like robot when I do that. Last week my feet went nub like when I got paralyzed and I could hardly move it, I think I have overdue me walking around the storeΒ΄s in Reykjavik, was walking like 2 hours constantly.. was feeling rather bad but it was so much fun going out with friends I did not want to complain to them πŸ™‚ but I learn a lesson about sit down when your feet is killing you πŸ™‚ it is 7 month since I was dx with GBS and it is still long road ahead to get full “recover”
    One victory .. went to shower all on my own.. stood there and wash my hair and body.. how great it was … next step is to get to my spa in the garden, what a wonder that will be πŸ™‚
    take all care and I tell you more how it is to be home for good.

    May 20, 2007 at 6:44 pm

    I have exsperent the same only been on Lyrica few months and I can tell that my weight have rather go up then down.. much more appetite since I started on Lyrica then on the nuerotin

    May 19, 2007 at 9:30 am

    Im out of the rehab.. Im little afraid to deal with things at my home, feel so little in my soul. Im so afraid to make mistake.. Im a perfictionist so I have to make my way to understand that I cant make that demand to my self.

    Im doing okey walking few steps on my own.. everybody is afraid when I do this, but if you dont push your self nothing happen. Im getting better and better with the crutch so hopfully I will use theim more then the walker when i come home for good.

    One thing does any one feel more cold in your hand and body after having GBS, Im always cold ?? I dont understand that.