Helga
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May 18, 2007 at 9:15 pm
I live in Selfoss town near Reykjavik, Iceland
May 18, 2007 at 9:11 pmI take 300 mg x2 and 225 x1 of Lyrica, they increast it for I have been having terrible pain in my foot
May 13, 2007 at 7:28 amI come home from the rehab for good. Im always walking faster. my balance is not good yet, that bothers me alot, Im so afraid it want come.
how long did it take for you to get the balance ok from you could start walking with help?
But Im doing good and got little knot in my stumac for I worry going from the rehab. Im so secured there 🙂
May 5, 2007 at 4:13 pm[LEFT]Well this week have been fun at the rehab, they tried me with crutches, and I could do it.. I’m not good in balance, but I could do this, now I’m practice in this walking 🙂 I thank god each day for my progress, and sometimes in the morning I forget I’m still little paralyzed in my foot, at least I don’t stand up and walk away from the bed:D. I’m getting better and better in the kitchen :p So now I’m starting to get my favorite food again.. after all these month in hospital and rehab it is wonderful too have my own homemade food.
They want me to let go of the wheelchair next week, but when I get tired I’m allow to use it. It will be strange to stop using my lovely wheelchair:D
I think when you have GBS experience then you live change, you have not so much tolerant for negative talk, and you shut up people that want to talk like that to you, about others. I have never been much for talking about others, but I feel that now I only want the best for everybody, and I don’t like when I hear talking negative about others, it is a man in the rehab that do this and I told him to shut up this was not the way we talk here, I would never had this courage before but lot have change inside me since I got GBS.
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May 1, 2007 at 7:31 am[QUOTE=Jfitzen]April 28 is . . . . Great Poetry Reading Day and Kiss-Your-Mate Day[/QUOTE]
And my birthday 😀May 1, 2007 at 7:29 amSmile 🙂 endless Smile the spring is coming 🙂
April 29, 2007 at 9:24 pmHello and welcome to the family 🙂
April 29, 2007 at 9:20 pmNow they in the rehab center are trying too unrehab me .. I have been so long time in some hospital that Im now send out in long weekends that is Im 4 day out of the rehab at my home, and only 3 day in the rehab 🙂 well Im walking fine with the low walker but I dont get as fast as I do in the wheelchair 😀 my left foot is still droping down when I walk but I can control it little when I lay down 🙂 Im feeling happy to see that Im seeing the end of the rehab in 1 of june. But at the same time it worries me, how will I cope in the real world, I was used to do all things by my self, now I have to ask for help doing things, like taking the laudry and put it into the closet, well it is not so much for me, I hope I can do this very soon.. other wise my hubby need some happy pills to stay in sane near me:D
best wishes to every one, love HelgaApril 15, 2007 at 9:05 amwith low walker, it is unbliveble much freedom, Im not alowed to walk with out some one watching over me if I would fall. Im still with drop foot on the left one. but the right one is starting to be normal.
tell you more next week.
every one take care, love and hugs from Iceland.April 15, 2007 at 8:59 amis this not a depress med? Im on Lyrica 2 a day, and the pain is unblieven hurting. I would think I need some more med while it hurt so much.
April 9, 2007 at 2:31 pmmy hands was all in mess and I have been working with speacial clay to get them to get strength and to stretch theim in right possision, and with lot of exersises and stretch I have goten theim almost right my hubby was realy afraid that I would have to have more help, but with this you can get the mucscle to respond to your doing and your head tell your hand what to do and in the end they start work as you want theim to do.
hope this help, this is just work and more work to healthy again after GBS
xoxoxoxxoxxo
HelgaApril 9, 2007 at 2:22 pmSteve you are amazing and you are doing so good. for me it is inspired to read your update, my self is in the 5 month and starting to use my feet alittle. Im at rehab center 5 days in very heavy program, but I did stay home over the easter and I found out I can move my toes on the right foot. That put smile on my face 🙂
greetings from Iceland,
HelgaApril 9, 2007 at 9:59 am[QUOTE=Paula]Yeah, I get dizzy when I’m tired also. But what’s really botherson to me is that my eyesight gets really fuzzy when I’m fatigued. It makes it hard to drive home from work after a 12 hour shift.
Paula[/QUOTE]
I get this double vision when I get cold out site and that suck bigg time :(:rolleyes:April 8, 2007 at 10:56 amwhen you get GBS or CIDP becouse then the one that cant watch you going down disapear like a wave, I found out very quicly who was going to stay my friend and I even got new friends while I have been in my rehab. But I lost also friends that I though would stand by my site through all. And that hurt alot, I got one friend when I was in the hospital and she has CIDP she found out 8 weeks after she got her first attack then they thought she had GBS. I find it good to talk to her about our health for we have not many to talk this too, here is no group of people that we can look for support from. I have been asked from nurses that are working at the rehab if I would like to work in the support field with people that have long term disesed. They say I have a attetuide that would help many people and want me to take a courses in thouse fields.
Though it is hard to lose a friend then in it is always a glimp of light in finding new friends as you can do on this board and in your next neighborhood is always some one that you dont know now but you will find one if you have the curage to go out and look.
I know this might seems silly but I have my thought of a actraction, if you want somthing and you think about it then it come to you.
xoxoxoxoxoxo
HelgaApril 8, 2007 at 10:32 amlast year we got 8 GBS cases here and two of theim was cronic, so yes it is much for we are only 300.000 in popularty. but some year are none digagnosed with GBS. I got it from chicken bacteria (camfoily) i dont know how it is writen. I started to smoke again, I did not want to smoke while my hands was parilised, but when I could hold a cigarret then I started again, stupied me 🙁 . I dont think the climet here have to do with how many get this but it an´t helping with recovery. When I go out and it is cold, I get double vison and it take me few hours to get my shight right again and it makes my very tierd. so if I was in warmer climet this would not happen I dont know.
Helga
