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I have got to call Marge and get her back in here.

The “Evil Twin”

See that you have finally arrived. Was I of any help to you getting in here?

How did some of you get to have an avatar? I have been trying since last night to get my avatar to work and it;s not. Some other members are having the same problem.

Help me out Jerimy,pleeeeeeeeeeeeeeeeeease.

Hi,
Some of our members are having a problem accessing this forum, so it’s possible things will be a mess for awhile.
I’d appreciate any advice on what I should tell people who email me that they can’t access. What can they do. I’m in New York and I think I hear Brandy screaming across the river in New Jersey.

Hey all – just ran into this site while reseaching gbs. Father was diagnosed about 2 weeks ago, went on respirator yesterday and the family is a bit freaked out. Hope someone here has a suggestion of where to find out more or at the very least, how to reassure the worried.

Thanks…

I don’t panick very easily but this must be one of the weirdest diseases around.

Last night all of the sudden the same scary sensations came back I was having while on the steroid prednisone a few weeks ago: A wave of electrical shock like sensations came over me starting in my legs and travelling all the way up to my chest making me almost feel like choking. I lost control over my leg muscles and could hardly walk. Fortunately, this time I had my “Ferrari” rollator to give me support. I knew it wasn’t a heart attack. But fearing that I had to call an ambulance and being alone in the house for a few days, I wrote down my wife’s phone number in Connecticut on a piece of paper for the medics to find. Feelings like falling asleep moved up my arms for a while longer while sitting in our Lazy-Boy recliner. I finally went to bed at about 11 p.m. still feeling very anxious and fearing I was going to die. I tried to feel my pulse because I thought my heart had stopped. I couldn’t feel anything on my wrists or neck because my finger tips are numb. I lay awake until about 1:30 a.m. listening to relaxing sounds on my iPod. I finally must have gone to sleep because at about 3 a.m. I woke up to pee.

I am doing OK today, talked to my wife on the phone and my daughter who just arrived in Seattle with Sydney, our granddaughter, to visit friends and to rejoin her husband. He just came back from a three week kayaking trip along the Alaska coast with two friends.

I wonder if any of you ever had a scary experience like that. It was fairly new to me.

Are we going to have catagories like we did on the previous site? Admin types?

Hauts here from the old US site. Although from now on I will go by Pam H, as Houts was simply a nickname my two boys were called in high school. When I registered the first time back in the fall of 2002 Pam was taken, as was Pamela, so I used their nickname. Also, I was unable to type myself, so it was actually my son who registered me. Even today, the first day, Pam was taken again, so I will go by Pam H.
This is all still confusing to me, as I can’t log on from the discussion forum, only from the link on Norb’s post. Weird, weird… I missed the forum, but did enjoy the UK site, will continue to pop in there still. But what makes me the angriest, are the number of old posts lost, with so much information. I know myself the amount of time I spent the past 3 1/2 years typing posts to people in need. I don’t have that kind of time anymore, will the others? Well, I am just trying to see if I am even doing this right, soooo…
Pam

Well Liz, let me the first one to :

[B]Wish You A Very Happy Birthday. I hope your day is special and fun.
Enjoy your Special Day.[/B]

Great idea to re-post what we have saved. I’ll make a start.