UK based – Our father (aged 76) has been hospitalised with a severe case of GBS (suspected AMAN or AMSAN variant). Ventilated (tracheostomy) in ITU since end of March until end of May (2 months). Then transferred to a neuro rehab ward within hospital. The Speech & Language Therapist have been working with him on his swallow & trying to improve his lip seal. Due to extensive research we are aware everyone’s recovery is different, not linear & takes a very, very long time. The speech & language therapist have said our father would benefit from a PEG being fitted as his swallow/lip seal are too weak to enable him to drink & eat. We are wondering if we could ask what other people’s experience is regarding time scales of when they regained use of swallow/ lip seal & when they were able to drink/eat again?
UK based – Our father has been hospitalised with a severe case of GBS (suspected AMAN or AMSAN variant). Ventilated (tracheostomy) in ITU since end of March until end of May (2 months). Then transferred to a neuro rehab ward within hospital. The Speech & Language Therapist have been working with him on his swallow & trying to improve his lip seal. Due to extensive research we are aware everyone’s recovery is different, not linear & takes a very, very long time. The speech & language therapist have said our father would benefit from a PEG being fitted as his swallow/lip seal are too weak to enable him to drink & eat. We are wondering if we could ask what other people’s experience is regarding time scales of when they regained use of swallow/ lip seal & when they were able to drink/eat again?
UK based – Our father has been hospitalised with a severe case of GBS (suspected AMAN or AMSAN variant).<span class=”Apple-converted-space”> </span>Ventilated (tracheostomy) in ITU since end of March until end of May (2 months). Then transferred to a neuro rehab ward within hospital.<span class=”Apple-converted-space”> </span>The Speech & Language Therapist have been working with him on his swallow & trying to improve his lip seal. Due to extensive research we are aware everyone’s recovery is different, not linear & takes a very, very long time. The speech & language therapist have said our father would benefit from a PEG being fitted as his swallow/lip seal are too weak to enable him to drink & eat.<span class=”Apple-converted-space”> </span>We are wondering if we could ask what other people’s experience is regarding time scales of when they regained use of swallow/ lip seal & when they were able to drink/eat again?<span class=”Apple-converted-space”> </span>
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My husband came down with a very severe case of GBS in 2016. Nine years later, he is still in a wheelchair but fortunately, he can breathe on his own, feed himself and do a lot of other daily tasks. However, he has never been able to regain the use of his hands properly. He has gone through several years of both OT and PT but unsuccessful is getting his fingers to bend, which prevents him from gripping things like a pen, a fork and drops things very frequently. Is anyone else experiencing this?
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