I was up to 80mg. of oxycontin my first 3 months of dealing with gbs pain.  I was able to replace that with 3-5 grams of good old kratom within a week.  (Taken every 3-4 hours.) That was about 2.5 years ago.  I have permanent finger and foot pain still.  Just an uncomfortable tingling and numbing sensation.  My one foot still feels like it’s in a block of ice.   As of this date I get by on 3 grams of kratom twice a day.  It will make you vomit if you over do it.  Stay away from lyrica, unless you would like to develop uncontrollable twitches over time.  I use cannabis too.  Some strains work well, others can aggravate it.

The GOV. recently said everyone will need an 8 month booster who had the original RDMA  vaccine.   I had the 2 moderna vacs and will definitely get the 3rd in a couple of months.  The 2nd shot did make me feel crappy for almost a week.  But better than being dead, huh?  My wife explained rather clearly to me yesterday that I am not immunocompromised due to my GBS is from my system working too efficiently  not under efficiently.  (Anybody jump in and correct me if this is wrong)

Yes, I can walk with a mild limp.  Non stop numbness in feet and 1 hand.  I can easily walk a 1/2 mile.  After that without a rest, I start limping badly in one leg.  I do my own therapy.  Very few doctors I trust and even fewer physical therapists.

I got the 2nd Moderna vaccine 2 weeks ago. 1st shot felt a little off for a couple days.
The 2nd shot, I felt it “big time” for over a week. But my non GBS wife felt the same way.
So now, gbs or not, I am going to enjoy the outdoor life again……………

Fauci was the same idiot that recommended NOT wearing face masks in the spring. Anybody remember that? He should be fired!

Have you tried kratom powder? 4 – 6 grams in some koolaid. Works every time for about 4 hours. You can build a tolerance, so I just take it at night when the foot pain acts up. Mild exercise on the treadmill. For me 20 minutes for a half mile, using the handrail bars to control foot pressure. If I go over that, it makes it worse the next day. The lyrica gives me those tardive twitches, I thought I had them permanently, took a couple months to resolve, you could not pay me to take lyrica again.

Yes, I love doctors too! Don’t trust some top 10 doctor advertisements, trust your own gut feelings.

Just recently, I started watching Billy Graham ministries on cable TV. It definitely helps to get a better perspective on the whole disease experience, there is only so much a doctor can do………