2020 Medications for post CIDP

Viewing 1 reply thread
  • Author
    Posts
    • #117811
      Hedley LaMarr
      Participant

      For years after my GBS in 2009 I have used Gabapentin to tap down the paresthesia in my feet.
      Question: What, if any, are the new treatment options? How about Cannabidiol? How about Curcumin?

      What are the new treatments for paresthesia? Has anyone moved on to new treatments?

      Thank you.

    • #117824
      jon swanson
      Participant

      Have you tried kratom powder? 4 – 6 grams in some koolaid. Works every time for about 4 hours. You can build a tolerance, so I just take it at night when the foot pain acts up. Mild exercise on the treadmill. For me 20 minutes for a half mile, using the handrail bars to control foot pressure. If I go over that, it makes it worse the next day. The lyrica gives me those tardive twitches, I thought I had them permanently, took a couple months to resolve, you could not pay me to take lyrica again.

Viewing 1 reply thread
  • You must be logged in to reply to this topic.