lovely got the paperwork back that the neuro filled out. I was right, he filled out most of it without even testing or asking me about such limitations as how much I can lift, carry, or whatever. Even said I do not require a companion when I go somewhere when I distinctly told him that I rarely ever leave the house alone. I don’t feel safe alone and have to have help at the store when I shop. So the paperwork is not in my favor, LOL not even filled out properly because he stated he was unable to test because of lack of facilities or equipment. I told him about the sitting and standing thing and he stated in the paperwork that there was no issues with that at all. “no neuro impairment” he said on most everything.
I have been writing my own rebuttal but am afraid it sounds pathetic and as if I would be better off putting a bullet in my head. Trying to stand up for yourself or make someone understand who has never been through any of this is next to impossible! What do you do? Keep fighting? Keep pushing? Or roll over and give up because that is what they expect you to do? My ears are ringing I am so upset. The patches of numbness are flared up and my nerves are dancing. UGH!

so what do I do now? Take the paperwork in and know I will be denied and have to appeal again? Does that reset my hearing time since this paperwork was supposed to be the ‘approval or denial’ without a hearing thing.

drs are a strange bunch. I actually had this neuro explain to me that he did not do administrative work and fill out paper work for people. I explained that the paperwork required by SSI had to be filled out by him because he is the specialist, showed it to him and he seemed put out it was true. I apologized for it being a pain, but it was necessary. We went thru the can you feel this/that, does this feel different than that, walk for me, stand with your eyes closed (hahahaha almost fell), stand on your heels (fell backwards against the table), walk on your heels I could not and told him if I can not stand on them how do you expect me to be able to walk on them? Then on my toes, slowly got sort of up on them and he wanted me to walk….again I tried to take a step and my feet collapsed. Told him I am unable to do so, he had me hold onto the counter and wanted me to jog in place on my toes?! WTH?! I could barely walk in place, and told him there was no way I was able to jog on my toes as he could see I could barely walk in place holding onto something. Explained the depression, the pain, body wide tingling, spots and patches of numbness, digestive issues, urinary issues, blurry vision that comes and goes, nausea and stomach pain, heart palpitations even at rest, he could obviously see how crappy my writing is, he did note weakness when I tried squeezing some tool (actually was shaking trying to squeeze it), diminished reflexes in my left ankle, almost over reactive ones now in my knees and other ankle (they were hard to find before). Told him a gallon of milk is heavy to me. tried to get it thru to him and his “lets hurry up and get her out of here” attitude (knew he was to the point before I went in but sheesh) that it was more than the fatigue SSI was saying was not disabling, it was the pain, the weakness, the not knowing what will knock me on my butt for several days. He did note that I have trouble with stairs and usually make a choice for the day or most of it which floor I will stay on. I try to use them as “exercise” if I can, but there are days I make sure I have what I need and stay either up or down so I don’t have to worry with them.

Anyhow, I have no idea if he will lean in my favor and fill out the paperwork for approval or not. I am hoping he puts it all together and sees that there actually is a real problem. If not, I will look for another attorney and attend the hearing after insisting on a complete battery of tests to further prove what I got going on. There were questions in the packet I don’t know if he can properly fill out without asking me or having a “mental eval” done. Like how well do I get along with people in authority, or coworkers. I can tell you I prefer to be alone, I am easily overwhelmed and sometimes very easily irritated…all of which can come across as being a B****. I don’t always play well with others, hard to when you hurt or are over stimulated.

I am going to put on my cozies and go take a break. Ugh dishes to do….put em off yesterday, can’t do it again. Wonder how much I could bribe the kids with to do them??

I’ll keep you up to date on things if I hear anything.

~Lori

I remembered something that sent ice through my veins today. For a few months (not exactly sure how long exactly) before I actually got hit with GBS and went to the hospital, I was having weakness in my arms. I remember finding it difficult to dry my hair (I don’t have long hair) and would have to rest often during the process because it seemed too much to hold them up and the dryer and brush seemed so heavy. I don’t recall any leg trouble except that at one point I do remember having trouble running and just figured I was “too old” to be chasing the kids around. I don’t know why I had not thought about this until showering today, then I was hit with the memory of that hair dryer being so heavy and realized it was BEFORE July 06 and my hospital/tests and downhill slide. Is this important information the doctor should know?? Like i said it really freaked me out to have that memory hit me.

Hugs
lori

I am no longer being handled by a lawyer because according to my current medical files (not once did he ask ME personally for any info) he said I didn’t have a case and he would not be representing me. He was legal aid and handles immigration matters as well as SS issues. No prob, because right after he dropped me is when I got the paperwork saying I may be able to get approved without a hearing with the right boxes checked and the proper signatures proving the right things.

I just got a call this morning and will be seeing a new neuro on the 14th in the morning. I was warned he is straight forward and to the point and doesnt hold anything back…I assume this means he has bad bedside manners? I mean I don’t want things sugar coated, but I do want someone to listen and hear me when I tell them what I am dealing with. Also people, strangers mainly, like that make me extremely nervous.

Now my question is, should I ask for the autonomic tests?

What else should I ask about? I don’t want anything left out.

thank you for the prayers and the info.

HUGS!