I’m only 8-9 weeks into/thru this but the past three days have been particularly nice. When I feel this good I do also forget what I have been going thru. As soon as i get to thinking it will all be okay very soon, the pain reminds me I cant overdo things just yet. One huge thing I wish I could let go of is hte fear I went thru. If I get a headache or a new feeling I have to try very hard not to allow myself to panic.

You dont know how good it is to hear another woman say her residuals are worse around that time. I thought I was going nuts. But for a week I felt awful and then it was much better. Not sure I am looking forward to this month thats for sure.

this is interesting. I have stopped all stimulants like coffee, soda, even excedrine (which was the only thing that helped with my headaches…hey!! I just realized something!! I havent had a headache in almost 9 weeks. Wow!). I find that anything with caffeine sends me into a tailspin. I buzz hard and feel as if I am going to jump out of my skin or could run and run and run until my heart burst. Only had that problem if I had a double espresso in the past, but not now. Anyone else have this problem with GBS in the beginning? Does it get better? I miss Dr Pepper.

Would this med cause the same effects? Most days I have energy and dont need a nap but I caught a cold and now my body is busy and wants me to get much more rest. I as a bit worried about the need for extra rest but I guess coughing thruout the night and not being able to breathe thru my nose is pretty taxing. I just want to be there for my family and maybe have a life again with them. I’d also like to be able to get back to work with my graphics but it kills me to sit for very long at my desk. *sigh*

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2. family should encourage GBSers , it s rrule n0 one, every single change is important we have to learn to celebrate recovery

see you[/QUOTE]

My family was marginally supportive. My mom, who also has her own problems, seemed to think her problems were worse than my own even when I could barely walk. “are you fixing dinner tonight?” she would ask…my response is “I can barely walk to the bathroom!”. My hubby cant fix it so he doesnt want to deal with it. I know that sounds harsh, and sometimes it feels that way as well. But maybe it isnt. He has been there for me and would help if i asked, but I havent. He says to keep a positive attitude, “suck it up” and concentrate on getting better and stronger. It has been hard to do this on my own but I have somehow. I think my kids, mostly my middle son, have been the most supportive even though they dont totally understand. It’s wierd, all my life I have had to deal with the good the bad and the ugly on my own it seems. sometimes I feel very lonely and sad.

8 weeks later I am able to do most everything I was able to before. I get tired easily, have some pain and weakness still, and am learning my limits. I feel blessed that it was hell (mild next to most here) for a bit but is getting better so soon.