Thank you for the compliment!

I truly wish more doctors understood the important impact hormones have on our bodies. Especially when it comes to autoimmune problems.

I learned very quickly to be my own advocate, dig deep to research gbs, and have been told by almost every doctor I’ve seen that I know more about gbs than they do. Some had been doctors for many years & never had a patient who’d had it.  Anyhow, learn all you can. If there’s an archive on here, there has been some good information shared in the past. I’ll quote one past contributor named Gene, if i remember correctly, “Rest, rest rest!” Listen to your body, it will tell when you’ve overdone things. If you don’t listen it will force you to. Be gentle with yourself, be kind to yourself, and give yourself grace during your healing process. It’s scary & difficult, but you are going to be okay.  Healing can still happen 3 yrs post onset. I have had some things come back on line a few years after that mark. All of this is as individual as each of us are.

I truly hope I helped give you some peace of mind. One step at a time, one moment at a time.

Hi there

Glad you found this place.

I had gbs in 06 and I still experience the full body tingling when excited/stimulated. I remember it being much worse while I was “recovering”.

Since you’re still healing this may ease for you as time passes since we’re all different & heal differently. If this is really bothersome, talk to your Dr or neurologist. You may need a nerve conduction study to see where you’re at & how things are coming along.

Our immune system attacked the myelin sheath on our nerves. Our system is over active. It overreacts to stimuli as a doctor told me.

Since at least one of the vaccines now has a warning about gbs, I’m not going to risk having my immune system overreact to something in this vaccine. I don’t get a flu shot for the same reason. I’ll continue to take precautions as I have for 15 years now.

Stay safe & be well.

There have been more cases of gbs in covid Patients. They’re thinking there may be a connection between the two.

I agree with everyone here except GH. Way too many cases of GBS happen after a flu shot or vaccine. And yes they do have a form that you sign regarding GBS and even have information against getting a flu shot in literature about the flu shot. You can get hit with this by having surgery, getting a cold, the flu, eating tainted meat….and so on. A lot of us have done exhaustive research for our own answers and have become our own advocates for our care. And we are still learning because it is in our own best interest. We don’t settle for the first thing that comes up on google. We dig deep, we find obscure bits of information, I have even personally had emails between Dr. Gareth Parry and myself asking and receiving information I had trouble finding elsewhere. Did you know your body can negatively react to even being pregnant? Did you know that the hormones in your body can cause your system to react in a negative way causing residuals to flare up? Even Caffeine, fake sugars, certain other foods. And the crappy one, sometimes your own body keeps on the attack long after GBS is “gone”.

Vaccines and GBS are not a conspiracy theory. WAY TOO MANY people have gotten ill because of this disgusting vaccination for it to be brushed aside as a coincidence. Easier to brush it under the rug or call people crazy than being sued over and over again.

it has all but come to a dead stop. The information here is poor for the most part and lack of support makes getting through the tough times more difficult. Wonder if people looking for information or support know that MDjunction has a ton of different active groups pertaining to GBS? I guess they do now. It is a shame this forum has fallen by the wayside because it was at one time a haven and a big help.

I recently read that in 85% of cases the cranial nerves are involved to some extent. Do some research and lots of digging into the 10th cranial nerve and the effects it has on the body. I still have no gag reflex, still have problems swallowing and sometimes clearing my throat, digestive issues, heart palpitations, up and down blood pressure, body temp that has dropped as low as 93.9 in a warm house while dressed comfortably, other times I will start sweating even if the weather is cool, get hiccups sometimes just by changing position in bed. Anyhow, read up on the autonomic system problems with GBS and the different cranial nerves.

I got hit in 06. Have recently been Dx’ed with seronegative RA, non-allergic rhinitis, Dx’ed with fibro and chronic fatigue 2 years after onset. I was told the GBS did a job on my system and my system is still reacting inappropriately. Still get muscle weakness without warning, numb patches, tingling, electric type shocks all over, blurred vision that comes and goes, trembling in my hands (horrible hand writing now), muscle cramps, twitching…long list sorry.

wish someone had answered this for you….I had that bear hug feeling for several years. It comes and goes now after 7 years. I hope yours stays away permanently. The numbness and such is normal considering you are so very early in your journey. Some days it may feel really bad, others it may seem as if you are almost back to normal. Remember that each day your body is busy healing, rebuilding, and it will take time for this to all fall into place. No one can say how long it will take, how much recovery you will have, it is all so very individual. Also, mild cases can be worse in the grander scheme of things than being paralyzed–a bad case. You may very well have little to no residuals once you recover, something positive to look forward to! I really hope everything goes well for you and that you heal quickly and completely.

take care of yourself and remember to rest, listen to your body, and never give up