fairly_odd_mother
Your Replies
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June 24, 2024 at 5:05 pm
Hi there
Glad you found this place.
I had gbs in 06 and I still experience the full body tingling when excited/stimulated. I remember it being much worse while I was “recovering”.
Since you’re still healing this may ease for you as time passes since we’re all different & heal differently. If this is really bothersome, talk to your Dr or neurologist. You may need a nerve conduction study to see where you’re at & how things are coming along.
February 27, 2024 at 3:20 pmI had gbs 18yrs ago. Wasn’t ventilated, no treatment because I was told it was anxiety. It was not.
I still have out of the blue weakness in my legs and sometimes arms. And, I often have muscle spasms in legs and lower back. The muscles will also start burning as if I overdid a workout. The only thing that’s worked for me is Cyclobenzaprine, warm Epsom Salt baths or a good magnesium supplement. These don’t work to relieve 100% of the problems, but helps keep it at a tolerable level. Since it’s been so long, I don’t think I’ll ever not have these residual issues.
August 17, 2021 at 2:51 pmOur immune system attacked the myelin sheath on our nerves. Our system is over active. It overreacts to stimuli as a doctor told me.
Since at least one of the vaccines now has a warning about gbs, I’m not going to risk having my immune system overreact to something in this vaccine. I don’t get a flu shot for the same reason. I’ll continue to take precautions as I have for 15 years now.
Stay safe & be well.
January 20, 2021 at 5:00 pmMy soft palate has been numb since I had gbs almost 15yrs ago. I have no gag reflex either. The right side of my face also has decreased sensation. Never diagnosed with mf variant.
November 28, 2020 at 12:45 amThere have been more cases of gbs in covid Patients. They’re thinking there may be a connection between the two.
