Robert

I take multivitamins as well…and have added Alpha-lipoic acid but only one 100mg a day. Higher doses that are being tried for neuropathy can lead to very low blood sugar and heart palpitations. I also read that protein is supposed to help as well as the omega fatty acids…also read about adding lysine and other amino acids. One day I will take just the multivitamin, the next I will take the super b complex. I have also added Silk Soy milk in Very Vanilla for Kids because it has high protein and omega stuff (and it tastes really good). I dont drink a lot of this because i am still wierd about too much soy in my diet and we get so much of it in everything we eat these days.

Anyone else have a “plan” that has helped them? I am looking for info too and I am sure others could benefit from this. All natural ideas are great!

Lori

My face was numb, my neck was numb, my tongue and mouth were tingly, even my throat was numb and tingly. I lost my appetite as well. I still deal with my neck getting tight, my face going numb from my jawline up to my cheeks, and sometimes it still feels as if my digestive system isnt working the way it should (I describe it as it feeling numb). So as ya can see from the posts so far, this is a very peculiar syndrome and can effect everyone who has it differently (but also similarily). Any chance that ya had really bad headaches before the actual numbness and tingling started? I still get these awful headaches that start at the base of my skull and wrap up and around my ears to my forehead. They are not very often now but I can always tell when they will get bad by the wierd pain that starts in my neck.

One night recently I had overdone things during the day and had a bizarre “Humming” feeling in a band across my foot! It felt like a sci fi beacon pulse (I know that sounds wierd) and I jumped up thinking I had something under my foot! Nothing was there. It would “hum” a few times then stop, then a few minutes later it would start up again. I havent had it happen since, but it was most bizarre.

I am about 12 weeks now and yes muscle spasms do happen. Our nerves are misfiring nad telling our muscles to do things. I have a lot of feelings that my muscles will cramp up into a charlie horse but it never happens. Its a bizarre feeling to be “right on the verge” of a cramp and then nothing. OR I feel I have to stretch my legs and feet often and cant figure out why.

Have you had a tight feeling? or that “twitching” as you are falling alseep? Some nights, depending on how tired I am, my whole body will jump and scare the heck out of me. I have had it before over hte years but now it happens more often.

Welcome and good wishes to you and your recovery. Did you have a mild case? Or were you hit hard?

Lori

I had problems with CTS for years. Not only in my hands and wrists but also my forearms. I know it is very rare to have this double whammy but from the symptoms and all I have heard and read about it, this is what I deal with. But never enough of a problem to even consider surgery. It was worse when I was pregnant with my kids, and would wake me up sometimes depending on my sleeping position (I’m a side or stomach sleeper and that makes it worse). Since July of this year it is awful sometimes. At night i get no relief, stress makes it worse, and sometimes my hands become weak. Some nights even if I sleep on my back with my arms across my body I will wake up with some pain and “sleepiness”.

I have also learned that we know ourselves better than our dr’s and sometimes we need to be less intimidated and stick up for ourselves and our treatment. I hope you continue to recover and that things get much much better for you.

Peace and hugs
Lori

I am dreading the next week. Since my GBS symptoms started, I experience awful residuals for a week. Its as if I am going thru everything day by day instead of how it was originally…week by week. Now I am only going on what I experienced last month, maybe this month will be better. But it is very scary to have symptoms that started this whole thing. I get panicky and of course that stress adds to residuals freaking out.
Also, around that time of the month I get very warm. My hubby loves snuggling with me on cold nights because we dont need an extra blanket LOL! I am only 36 but I have noticed for hte past couple of years my periods are shorter and not so heavy. Warm flashes around that time, and very emotional. I didnt suffer from PMS until I had my 3rd child and turned 30. My mom had a total hysterectomy at a young age so I get to turn to my sister for advice. I do beleive that women are going thru the change much earlier than before. It may be due to all the soy in our foods, it may be do to normal “evolution”….more people, more people having less children, we dont need to reproduce like our great grandparents did. I dunno, just a theory. I did talk to a genetist (sp) a while back and he comfirmed that girls starting development earlier, boys being effeminant, are directly linked to all the plant estrogens in our food and our environment. Soy can be helpful, but the amount is a huge deal. In Asia they consume much less than we do, hence the health benefits. Too much of a good thing and all that.

~Lori

I went thru the not eating thing myself. Nothing interested me and if I did manage to eat something it seemed as if my digestive system went into spaz mode. Honestly it felt as if I was numb inside from my stomach down. I countered it (had to get something into me because i was losing too much weight too fast) with nutritional drinks (slim fast, ensure type stuff) and silk soy milk for kids in very vanilla and lots of water. His appetite will come back, it just seems to take forever.