Hedley…I have not been for quite some time, I am 15 yrs. post gbs.  I live with pain in my legs all the time, and to be honest it gets worse as I get older, but I won’t give up.  Oh I have days were I say why me especially after a stroke, shingles and several other problems.  However I am thankful for a sun rise every day.  Life is what you make it, if you want to be full of anger and self pity you will stay hurting nomatter what anyone says to you.

I hope you know you have many friends that are here for you.  I can tell you not to give up, but that is up to you.

Hi MDM: It took at least 7 months before I could go back to work, I should not have gone back then, howver, they were going to fire me. I worked 12 hr. shifts, which was almost impossible. If if were not for the girls I worked with I would never have been able to do it. They choose to work many of my hours. They were great, administration was another story. Take your time, I fould out that a job is not worth your health.

Roxie…I am 10 yrs since GBS, and the residuals seem to be getting worse.
Pain in legs within the last years has gotten much worse, of course I’m not getting any younger either. Fatigue is a big problem, pain in feet gets so bad I can’t stand to put a shoe on. I have developed other conditions, which some docs say it could be because of the Immune system and how it was affected. Skin rash, and heart problems. No one can figure out why or what from. So if you are still collecting data I thought I would send my info.
Have a Happy New Year. 🙂

Helga: I know what that pain is like, I can’t walk the pain gets so intense. It has been 10 yrs. since I came down with GBS, and lately the pain in my legs is getting worse. I’m having trouble getting up stairs and doing things. I do try and rest in between doing things. The morning I can hardly walk. I’m afraid I’m getting disgusted at this point. Sorry don’t mean to be a downer.

I received my first and last flu shot back in Dec. ’96 they never officially stated I got GBS from it but was told never to get it again or any other immunizations. I believe me I never well.

Hillsmom. This site gives you what many of us have gone through and continue to, but I believe there are many that don’t need this site because they did improve fully. 🙂 So don’t look at the downside, think positive and we are here if you need us.

I have weakness in my legs, pain and fatigue is a constant battle. I also have developed a rash over most of my body, which no doctor can diagnose. The pain on my soles of feet can become unbearable. I am ten yrs. post.