June 30, 2013 at 5:30 am
New member here.
I have GBS and my diaphragm is tight around my chest like a belt. Was paralyzed from neck down about 50 days ago. Is this normal?
August 8, 2013 at 10:08 pm
Well it’s been 3 months since my GBS first started and the tightness has gone. I still got the numbness and tingling in both hands and numbness on both feet.
October 5, 2013 at 12:53 am
wish someone had answered this for you….I had that bear hug feeling for several years. It comes and goes now after 7 years. I hope yours stays away permanently. The numbness and such is normal considering you are so very early in your journey. Some days it may feel really bad, others it may seem as if you are almost back to normal. Remember that each day your body is busy healing, rebuilding, and it will take time for this to all fall into place. No one can say how long it will take, how much recovery you will have, it is all so very individual. Also, mild cases can be worse in the grander scheme of things than being paralyzed–a bad case. You may very well have little to no residuals once you recover, something positive to look forward to! I really hope everything goes well for you and that you heal quickly and completely.
take care of yourself and remember to rest, listen to your body, and never give up
October 5, 2013 at 4:18 am
Thanks fairly_odd_mother for your response. The tightness around my chest is gone but the numbness in both hands and feet is still there. As far as the tingling sensations, it’s not so much tingling but rather more like hypersensitivity. If I don’t move my hands or feet, I don’t feel any tingling. My hands feel normal. However, when I touch or handle something with my hands or take a step with my feet, it is then I feel the needle like sensation. If I was to step on a grain of rice with bare feet, it feels like I stepped on a shard of glass. I do see some major improvements in my hands and feet. I’m going on my 5th month come Oct 11th and just 3 months ago both my hands and feet felt like they were filled with pressure and going to explode. Now, there’s no pressure present and the numbness has trickled down only in the fingers. I’m in the process of writing my journal just to remind me how precious life really is. How we should never take ordinary things we do daily in our lives for granted.
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