Muscle spasms/tension decades after GBS

Hello,

I had GBS in 1992.  I was not on a ventilator, but most of my body was affected with numbness/weakness/paralysis.  I seemed to recover fully, but then had what seemed like a mild relapse in 1998 – I mainly had trouble standing and walking for a couple of months.

For the past decade, I’ve had a lot of trouble with pain in my back and butt area.  I deal with almost constant muscle spasms, but no clear answer as to “why” I’m having this pain.  I’ve been prescribed a number of different medications with minimal or no help.  One medication, gabapentin, actually made the pain/spasms worse.

My current neurologist thinks that my problems could be due to having GBS all those years ago.  I’ve had recent nerve conduction studies, and he said he can definitely see from the results that I have residual nerve damage.

I am just posting this to see if there are others with a history of GBS that deal with muscle pain/spasms, and if anyone has found something that has helped them.