Thanks Brandy,
I totally agree with you, it will be interesting to see what happens. I am a nurse at a clinic and it’s always hard for me to bite my tongue when others ask about the flu shot, I really have nothing good to say about it. Others seem not to understand. Not that they would since they did not go through what I did.
Schel

Thanks everyone for your continued support. This weekend has been not to productive for me. Sleep, Sleep, Sleep. It’s hard when my mind says I can do this this and this and then my body says no you can’t! You all know what I mean. Those at work see me all of 3 days a week which is all I can handle and then that is a challenge sometimes. They do not see me when I get home and collapse on the bed or couch after I get home from work. I used to work 40+ hours a week. After GBS/MFV 24 hours a week is a challenge. Lately it has been tough to even do that. Well all take care and thanks for the support!
Going back to bed, can hardly keep my eyes open!
Schel

Hi everyone.
Last visit with the neuro, and then she left the clinic…. 😡 so now I am left with looking for another doc, she said MFV/ with possible CIDP. So…. I did well after my leave up until today and now, I am at home agiain for overdoing it. 🙁 😡 When am I going to learn?

I am back in the saddle again of this icky disease. I volunteered to take on more at work to just “help out” for a “month” and they took advantage of it and scheduled me for 2 months like this. I havn’t even made it a month yet and had to call in today because of the symptoms. Droopy face, fatigue, pins and needles all over, feel like I have a 9volt battery charging constantly in my mouth, I drip food all the time out of my mouth. I met with my supervisor this week and told her it would not work out to keep going at this rate and she said “well you told me you would cover!” I told her I would, however I could not predict that I would start feeling this way again. IN ONE EAR AND OUT THE OTHER….. So she calls me back after leaving a message about my symptoms and that I can not push myself another day like this for fear of ending up really ill again and in the hospital and she says “Well Julie doesn’t feel well either! I am scrambling to figure out what to do.” Like I am going to say “oh I’ll try to come in and see how it goes.” Sorry lady, I havn’t called in once yet since being out on my leave last November and your not going to guilt me into risking my health at this time!!!!

Thanks for letting me vent! I feel much less guilty for staying home to rest today for overdoing it and thinking I can when I know I shouldn’t have. Only one to pay is me and my family. When am I going to learn?

Schel

Hello All,

Well, after a long long and I must say, artic cold weekend, my son is on the mend. He is doing better and his temp has been only in the 100’s off and on. I would like to [FONT=”Verdana”][SIZE=”2″][COLOR=”Blue”]thank everyone [/COLOR][/SIZE][/FONT]here who have helped me and said prayers for him.

I am glad he did not have the flu shot. GBS would have not been this short of a duration.
Got to go he is telling me he is hungry finally!

Thanks again,
Schel

Hello everyone and thank you for your continued support and prayers.
It is as we expected. He has Influenza A. My dad and the doc we saw both kind of gave me the 3rd degree about “that I should have had him get a flu shot.” You know… just maybe… if they had had GBS maybe their thoughts would be different. It really frustrates me when I get these things said to me and they do not know how GBS is or feels. I wouldn’t wish GBS on my worse enemy. The flu? That either, but if I had to pick, it definately would be the flu. Those of you here with GBS understand where I come from.

His temp has gone as high as 104.5 today. Talk about scary. I have managed to give him tylenol alternated with Ibuprofen and sponge bathed him with luke warm water to get it to drop. We have got it to come down to 100.6 at one point. I am setting my alarm every 1-2 hours tonight to make sure I can check on him.

I am a little scared after hearing about the 8 year old in St. Paul MN who recently died from complications of the same thing.

I also have a memory of when I was a child and my cousin’s cousin that had a viral infection at age 8 and also died. Back then they were not sure what it was that she died from, strep, high fever or flu.

So I am sure anyone who has a child here can understand my being scared and overprotective. Willie is also my only child. I would just loose it if anything ever happened to him.

My husband thinks I am overprotective and over reacting. for some reason though something is telling me to stay alert which is also hard with my fatigue I have. I would do anything for my son though.

Thank you again for everyones support and prayers. I wish I could give you all a big hug.
Schel

Thank you everyone. My plan is to go do the procedure, and come home lay still and flat with all my Lifetime Movies I have taped. Oh and sleep. This drives me nuts though all this laying around and thinking I need to do this and that you know?
I know I have said in the past if I could just have a day off. Well here it is and now I don’t want it!
Thanks.
Schel 😉

[QUOTE=Ninus]Schel, I had a Lumbar Puncture recently. Another patient told me that I should lie in bed for a couple of hours. I asked the doctor, who performed it, and he said that I should stay in bed all day in order to avoid a severe headache. He also ordered 3 liters of water, and also coffee or coca cola – which should help close up the wound, I think. In case of headache, I was informed, they would draw blood and put some in the needle wound in order to stop the pain. No other restrictions as far as I know.
Ninus :)[/QUOTE]

Did you get the headache?

Schel