Your Replies

  • January 25, 2022 at 5:41 pm

    I’ve had extractions and other dental procedures after GBS. Everything has always gone well. No problems.

    January 11, 2022 at 7:38 pm

    I got diagnosed with GBS 9 days after receiving both the flu vaccine and shingrix at the same time. That was two years ago. Since then I’ve gotten the J&J and Moderna with no problems.

    September 23, 2021 at 9:16 pm

    I had excruciating leg pain at night for several weeks, starting during the acute stage (this was in 2019). It was muscle-related; I took baclofen and flexeril for several weeks before the pain finally went away.

    September 21, 2021 at 8:07 am

    I don’t know how many other people are in the same boat as I am (diagnosed with GBS in 2019, 95% recovered now), but after receiving the J&J vaccine six months ago, I asked my doctor about switching over to a mRNA vaccine once they introduce boosters because of the acknowledged association of between the J&J and GBS, and he agreed it was a good idea. Now the whole thing with boosters is up in the air –at least for this week. I’m not officially immunocompromised for the “third” mRNA dose that was introduced in August. So my quandary is how long to wait and how hard to push for a first mRNA shot as a “booster”. I’m sure that it’s going to freak out whichever clinic I call because the request doesn’t fall into any of their official categories and no one seems to be discussing this scenario publicly– heck, they almost refused to give me the J&J when I told them I had been diagnosed with GBS after receiving the flu and shingrix vaccines together in 2019.

    August 17, 2021 at 9:58 pm

    Wow, thanks Jim. That’s great to know (who decides these things, anyway?). Was it large chain pharmacy? I’d go and get one too right away, except that I got the J&J. I wouldn’t get a second one of those, though.

    August 13, 2021 at 7:17 pm

    Sorry to hear this, Courtenay. I wish you a quick recovery.

    July 13, 2021 at 8:00 am

    Yes, given what we know about GBS, it is not that much of a surprise. And yes, there was a shingles vaccine back in 2014 when that discussion took place here. But the newer Shingrix vaccine wasn’t even approved until 2017. I’ve always had my suspicions that the specific combo played a role in my GBS.

    What’s new about this is this is that it’s the first time (I think) that any official health-related agency has publicly acknowledged the possibility/likelihood of a link between the Shingrix vaccine and GBS. Of course it is carefully worded; apparently there’s enough of a correlation to issue a warning. I’m not sure they would ever acknowledge a causal relationship — I don’t think they’ve done that even for the flu vaccine, have they?

    FDA has determined that the results of this observational study show an association of GBS with Shingrix, but that available evidence is insufficient to establish a causal relationship.

    July 12, 2021 at 3:36 pm

    I fit right within that group of J&J recipients. But we ought to keep in mind that this a pretty tiny percentage, and they talk about 100 *preliminary*, not confirmed, reports. So it’s always good to keep reports such as this one in proper perspective. All too often FDA and CDC releases, warnings, etc. attract alarmist reactions in social and popular media.

    June 19, 2021 at 5:15 pm

    @ResearchingGBS I can certainly relate to your concerns and being in the fence. Vaccines are intended to stimulate an immune response. I think that’s the point.

    Of course, there were new two people who  developed GBS or CIDP and another who had reactivation of their disease as a result of that call.    So that is 3 out of 18 who had adverse reactions.

    I’m not sure whether this would affect your deliberations, but do we know really this? Correlation doesn’t necessarily mean causal.

    Best wishes in deciding what to do.

    May 26, 2021 at 3:26 pm

    Did the people who received the Pfizer vaccine get GBS as a reaction to the vaccine (or did their doctors think so), or from something else? And was the Moderna reaction associated with the GBS, or was it a coincidence?

    April 27, 2021 at 7:39 am

    fwiw, I was diagnosed with GBS (not CIDP) two weeks after receiving *both* the flu and shingrix (Shingles) vaccines at the same time (perhaps not the wisest thing to do in retrospect). That was 18 months ago. DOctors recommended that I stop getting the flu vaccine and to not get the second dose of shingrix. At least at that time, unlike with the influenza vaccine, there was no “known” link between shingrix and GBS. At any rate, since then I’m almost fully recovered, and received the J&J COVID vaccine about five weeks ago without any serious side effects or reactions.

    March 20, 2021 at 9:01 am

    I got the J&J vaccine yesterday (even though they told me Pfizer when I made the appointment). I’m not on IVIg. Almost a year and a half out from being diagnosed with GBS. They gave me a little trouble, not wanting to give me the vaccine without verification from my doctor that it was ok. T=It was resolved quickly. Anyone else run into anything like that? Feeling fine today.

    March 18, 2021 at 9:46 am

    @Jim-LA, would you, or might the medical community more generally, view VAERS reports submitted by medical professionals differently from reports submitted by non-professionals?

    February 23, 2021 at 9:39 am

    @ceekaydub Thanks for posting this. I was also diagnosed with GBS as a result of the flu vaccine (in 2019). I think this definitely bears watching. But by itself I don’t think it changes my own calculus about getting vaccinated. Several reasons come to mind. First, the article does not say much about whether they eliminated other possible causes, such as an infection. That leaves the causal relationship a bit tenuous (and it’s probably never 100% anyway), at least from where I sit. Second, even if the vaccine is a/the cause, it probably should not shock anyone. GBS is an autoimmune disease, and vaccines activate the immune system. One documented case is certainly evidence, but statistically it may not be significant. We already have reports (here) of GBS patients receiving the vaccine without incident. Third, there is still no evidence to indicate that the vaccine can cause a *relapse* of GBS.

    So yes, it’s a roll of the dice, but I’m hoping the odds are on my side. I’m seeing my primary next week and will ask about this, but I expect that he will have no special information and will likely leave the decision up to me. Of course this could all change if we get more data pointing one way or the other, but we don’t have much yet. That’s my $.02.

    January 8, 2021 at 5:39 pm

    And the very next paragraph specfically addresses GBS:

    People who have previously had Guillain-Barre syndrome

    Persons who have previously had GBS may receive an mRNA COVID-19 vaccine. To date, no cases of Guillain-Barre syndrome (GBS) have been reported following vaccination among participants in the mRNA COVID-19 vaccine clinical trials. With few exceptions, the independent Advisory Committee on Immunization Practices (ACIP) general best practice guidelines for immunization do not include a history of GBS as a precaution to vaccination with other vaccines.