[QUOTE=Leilani]Thank you for all your responses everybody! Thank you thank you for your stories. I’ve done a lot of research for GBS, I understand it’s slow, but as I’m exhausted I start to panic and get anxious. Then it’s hard for me to assure my mom without some specific stories in hand (I’m a horrible liar).

I’m working on trying to get the extension (hoping for the best, expecting the worst), but now I also realize, when mom comes home, it’s time to invite a GBS survivor to give a pep talk to mom. Someone who REALLY knows what she’s going through.

Thanks again everyone, I’ll keep you posted.[/QUOTE]
If I could afford a flight to California I would leave today. I had a ‘liason’ (GBS survivor come visit me with his lovely young family. It was a really potent experience that helped me a lot.

[QUOTE]July, she had extensive PT/OT and has since been able to wiggle her toes more consistently, move her feet, bend her knees, and move her thighs, but not enough strength/control to move completely.[/QUOTE]

That is good news! ANY improvement has to be celebrated, with fireworks if possible. Strength and control will come.

[QUOTE]We just found out last week from the insurance company that since she still cannot stand after 6 weeks of extensive PT/OT, she has “plateaued” in their eyes, and they are refusing to extend her stay at the hospital. So with a heavy heart, we are taking her back home next Friday.[/QUOTE]

Shame on those Nazi politicians who want to bring proper healthcare to all Americans. :p Though Canadian healthcare has its problems, at least in Canada patients stay in the hospital until they are out of medical danger.

Anyway, think of this as a HUGE positive. Hospitals SUCK and are a mental drain on the patients that have to endure their ‘care’. She is much better at home. Love and distractions using small comforts have been a big part of my recovery. A lot can be done with theraband, leg weights, light dumbells, and more at home. If you were present at her physio sessions, just carefully do some of those excercises at home. Local physio sessions could also be arranged, sometimes in your own home. Check all of her health coverage options. The SWIMMING POOL has been great for me, you could work with your Mom at a local pool when she is ready to get into one.

Look on craigslist if you are near a city and there are great deals. People are always seling off stationary bikes and other equipment (cheap) that she could use when she is more able. A home gym or a healthclub is a great option.

[QUOTE]I would like to gauge the chances of my mom being able to stand/walk again. I want to believe that since she can move her legs, she will stand/walk again one day, even if it will take a long time, I’d like to believe it. But I want to hear from you if that belief is true or not. I’d like to know. ~_~ [/QUOTE]

I haven’t met your Mom and can give no medical prognosis. But I believe SHE WILL. Your Mom and all of those close to her must first believe this, even blindly. Celebrate every achievement.

[QUOTE]I know everyone is different, but I’d like to know so I can be realistic. I will work her out everyday to the best of my ability (and energy). My mom is very depressed that she is burdening the family, but I keep telling her she’s getting stronger and doing more, and that makes it easier for me.[/QUOTE]

Be realistic (most people-70%!-are reported to [B][U]fully [/U][/B]recover, they probably spend little to no time on this forum) or unrealistic (belief is powerful, even when it is not apparent). And by the way, you’re a great kid and your mother should be proud.

Is therenot a way that we can find this out ourselves and not pay a service? Are these tax-credits you are going after?