northernguitarguy
Your Replies
-
July 27, 2012 at 8:10 pm
The residuals in my hands have not gone away, but I think I have adapted to the new situation. I may never be up for the two-hour gigs that end at 2 AM (hello fatigue). However, I was still able to get up and groove with some of my middle-school students and colleagues at our annual charity Rock concert.
I’m most proud of this over-the-top rendition we did of Stevie Wonder’s ‘Superstition’. The band teacher put the horn section together and we added clavichord, drums, bass, vocals and yours truly on rhythm guitar. All the musicians here are 13-14 years-old, but put forth the discipline needed to keep a tight Funk groove going. I couldn’t resist working a guitar groove into act and it was a great opportunity to play for a crowd again Never in my life did I ever think I would play to a throng of screaming teenagers. 😆 ) However, there were times I believed I might never be able to play at all. I’m glad I played through the pain to help my hands recover. I’m grateful to those who wouldn’t let me quit and supported me all the way.Click on the link, then click on play to give it a listen! NOTE: THIS HIGH-FIDELITY RECORDING CANNOT BE FULLY EXPERIENCED WITHOUT EXPANDED DYNAMICS-CRANK IT UP!!!
July 16, 2012 at 1:09 pmAlice would tell you it cured her
June 16, 2012 at 12:37 pmHey NGG………….glad to see you’re still at it………….not backing down…………that’s the way I’ve approached my recovery……doing 10 mile runs now, something I didn’t think I’d ever be able to do again…….gotta stay positive…….keep on rockin’ in Canada!!!!!!
—————————————————————————————————————————————–Yo Tommy, good to hear from you! Ten miles? That’s AMAZING!! Give that GBS a big middle finger! You’re right, don’t let it win-YOU WIN!! There is a road back in recovery. The things we love to do don’t have to be taken from us.
Rock on Cathie! Good to hear you are back at it! Hubby deserves a medal-don’t all our spouses who stand behind us and give us oodles of support??
June 6, 2012 at 2:46 amStill giving it hell!
May 20, 2012 at 1:38 pmIMO fatigue is an obvious factor. Have you tried having morning sex? You might have more energy then. Also, can you be ready for action after you ejaculate? If so, go for seconds, you are likely to last longer.
May 16, 2012 at 12:02 pmI reacted badly in the manner you describe when I tried to use oxy for muscle pain during the acute phase. It stopped when I quit
April 16, 2012 at 11:24 pm^^^^^+1
April 6, 2012 at 8:51 pmI hate that I can’t edit! In my previous post, I meant to say that medicine needs to be challenged and that the road to successfully understanding complex illnesses accepts this. There are many instances where the medical community has adhered to nonsense because it was accepted and reviewed by experts.
April 6, 2012 at 12:33 pm‘I see you are really taking in this thread – Popcorn and watching in 3D…how can it get better than this? This forum needs a little competative change of thoughts every now and then; it’s good and healthy for our neurons to activate…what do you think?’
______________________________________________________________________________________________________
Hi JethroHey, what can I say? I love a good debate. But seriously, I am glad to see you challenge the status quo. GH does know a lot and seems obedient to established knowledge. However, I feel that the true successes in the medicine have come because of challenges to gross intricacies. GBS info has a lot of unanswered questions and is not well studied.
Of course there is much to be grateful from the care I received in hospital. But to have complete faith in the medical community-as far as GBS/CIDP is concerned-seems too great a leap. I have been presented with many assumptions. In my case, I can’t point to anything as a trigger for GBS, unless you want to count a cold sore. And since, there have been other conflicts.
Anyway, I am glad there is some kind of debate happening, even if only on this thread. To me, there seems to be an indifference in the medical community and even within the GBS/CIDP community. That someone-anyone- is asking questions is to me a good thing. Drew’s work is actually the first survey I have seen since coming down with this nearly two years ago. Thanks to both of you for taking the time and care to do some digging.Cheers!
-NGGApril 6, 2012 at 1:09 am
April 4, 2012 at 9:37 pmExcellent post Jethro!
April 4, 2012 at 11:34 am“Drew,
I just finished your survey. I wish you luck in getting different orginizations interested in your data. I did a simple survey about 5 years ago and was blown off by all of them except the Mayo Clinic. I was told that surveys without hard medical evidence (meaning actual medical record data) are not accepted.Best regards.
Jethro”
_______________________________________________________________________________________
Wonderful. Here we have an illness that is diagnosed almost entirely by observation of symptoms, except the patient’s observations don’t count.March 25, 2012 at 1:30 pmAscending numbness is not a good sign. Please get to a hospital, preferably with a Neurology unit.
March 20, 2012 at 3:09 amIf you’re family and friends are willing to help, embrace it 🙂 This recovery will require patience and time. But you will see improvements from time to time. Celebrate these no matter how small.
Definitely apply for disability insurance.
You can’t force recovery. You will need to keep active somehow (I liked the pool. Felt good and I didn’t have to worry about my balance). But keep in mind that you will need to get plenty of rest as well. Finding that balance is a challenge for many.March 19, 2012 at 1:46 amHello there
Sorry to hear about it all. So good that you didn’t go down and avoided intubation. Good sign that you were in and out of the hospital in 6 days IMO. Some are there for months. Brutal. Nevertheless, even a so-called ‘mild’ case is scary.
I would be happy to talk to you. Speaking to others who survived or were fighting back helped me. You can ask questions here, and I or someone else will answer. If you wish to chat, contact me at northernguitarguy@yahoo.ca and I will respond.
Hang in there
