arlingtonal
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January 12, 2007 at 11:52 pm
One thing that’s very obvious is how different each person’s GBS experience is. For me, I was hospitalized Aug 2, ’05. As of now there is some facial numbness – but my smile is just about the same on both sides. Almost every day; I have to check to see if my socks are bunched up at the balls of my feet – they never are! After being totally paralized and on vent; this is great recovery. To be honest; my stamina is better now than before I got sick. I make an effort to walk every day and ride my stationary bike, so at 66 I’m in better shape than before GBS. Only a couple of months to spring golf.
Happy New Year!
AlJanuary 12, 2007 at 11:26 pmMine showed up in August.
AlJanuary 4, 2007 at 10:37 pmAnnie
WOW! I am home and nodding can you see me? Are you paying attention.
I can’t HEAR you. We offer quick responses by instant people. So fast they are faster than light, you need to be paying attention.January 4, 2007 at 10:20 pmYour concern sounds like what my daughters were writing in Aug ’05.
I too was in CCU within hours of diagnosis and on vent within three days. I now am pretty fully recovered after 9 weeks in hospital; 5 of which were acute therapy. I am 66 so there is good hope for your dad. I will pray for him and for you.
AlJanuary 4, 2007 at 10:13 pmKathleen,
I am about 15 months past GBS and have not experienced more illness than before. One cold about a year ago seemed more severe than most, but not anything to worry about. I do, however remember thinking what you are thinking. Will I get sick and GBS again?
God Bless you!
AlNovember 22, 2006 at 10:07 pmKelly, I’m one of the ones who doesn’t post much…BECAUSE I am one of the lucky ones that has made a rapid and mostly complete recovery. When you work and resume your life it is difficult to make 900+ posts. I guess it’s important to know people have made recovery. I remember the nuero doctor telling me I would…and then my regular doctor telling me it would be months NOT weeks. The thing you learn here is how variable GBS is. I’d like to say my recovery is due to good attitude and hard work, but I have a feeling those who have not recovered so quickly have worked much harder and have a very positive outlook.
My hat’s off to all who keep on keepin on.
Happy Thanksgiving!
AlOctober 15, 2006 at 5:01 pmABSOLUTLY, your symptoms will continue to get worse as your body continues to attack and kill nerves. Soon you will not be able to walk and maybe not breathe.
Find a nuerologist that knows about GBS; immediately.
I don’t want to be a worry monger but things can happen quickly….
AND if you have GBS; the sooner the progression through your body is stopped the better and more complete will be your recovery.
ALOctober 15, 2006 at 4:53 pmDave,
I was diagonsed Aug ’05 and spent 9 weeks hospitalized. I still have tingling hands and feet; more so the feet. The feet feel like I’m walking on bunched up socks….I have learned to sort of ignore the sensation and get on with life.
Hope you can too. This is nothing compared to being on life support and totally paralized. I’ll pray for you.
AlOctober 5, 2006 at 10:40 pmWell you get a lot of opinions here…all I know is I had both over a period of about 10 days. The first IVIG within about three hours of being diagnosed.
The idea is to stop the prgression of your antibodies attacking your nerves.
After nine weeks I was able to be discharged to home with a walker and out patient therapy. Within a month after, I was able to work part time, and in three months work full time, driving and having a pretty normal life.
Try Mayo Clinic web for more information – they may have doctors who specialize. My doctor at Northwest Community Hospital, Arlington Heights, Il seemed to be quite knowledgable, and based on my recovery I guess she was.
AlOctober 5, 2006 at 10:30 pmA nurse friend took me aside at a wake we at, to talk…she had GBS 10 or 12 years ago and is scared of going thru it again. I told her about the forum and the low insidence of relapse…which is reinforced here constantly. Her look of relief was just amazing.
When I went in the hospital the forum was were my daughters went for info…and the knowledge helped my wife and I get through it.
AlOctober 5, 2006 at 10:20 pmThe Lord Bless you and keep you.
The Lord let His face shine upon you, and be gracious to you.
The Lord look upon you kindly and give you peace.From the reading of New Years Day 2006.
Catholic Lectionary.
AlOctober 5, 2006 at 10:13 pmA little spirit is good for the spirit
AlOctober 5, 2006 at 10:11 pmI can understand the feeling about the continuos questions about how are you doing…no one knows what you are going through. This week is one year out of hospital after 9 weeks – 2 CCU, 2 specialty hosp, and 5 acute rehab. Even toward the end of hospital stay I didn’t look “sick” other than needing a walker…My stamina is good now, but still have tingling feet and hands…that may be around for a while…but I’m used to it and can ignore most of the time.
Hang in and keep on keepin on.
AlAugust 26, 2006 at 7:41 pmHi Nancy,
I’m late reading this …but since Peter can’t speak, communications is a problem, and if you haven’t had info on the subject…my family put the alphabet on a sheet of paper…..I could point to letters and my wife got pretty good at figuring out what I wanted. It is slow conversation, but some.
Good Luck, you are in my prayers.
ALJuly 21, 2006 at 9:59 pmThe fact that you are here says something.
You need to find a nuerologist SOON…that is familiar with GBS. The sooner the progression of nerve damage gets stopped the faster will be your recovery. Don’t wait.
Good Luck.
AL
