arlingtonal

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  • July 21, 2006 at 9:53 pm

    Your dad will get better….the thing is a late diagnosis and treatment will likely mean a longer recovery. My family was told by the nuerologist…the sooner you can stop the advance of nerve damage, the faster will be recovery. I thank GOD for that doctor every day because people call me miracle man …thay expected me to be down for a year. And I was able to get back to work and life in about 2-1/2 months. Get the best knowledgeable nuerologist the hospital has and IVIG treatment to stop the nerve damage so recovery can begin. I’ll be praying for you.
    AL

    July 21, 2006 at 9:43 pm

    I don’t know what causes it….but after 11 months my hands and feet still do.
    My right foot feels like I have bunched up socks…A voluteer at my rehab hospital had GBS 6 years ago and still has tingling…..I can deal with that … I can now walk, talk and do without a diaper….Life IS good.
    The best!
    Al

    July 21, 2006 at 9:37 pm

    I am conviced stress is a factor. The week before I came down with GBS was HELL week. I even had someone send me a newspaper story about the idiots you work with can kill you. A story about stress – a week later I’m in the hospital on life support.
    Keep on keepin on.
    AL

    June 29, 2006 at 9:27 pm

    Do what Jerimy said and and have a piece of……
    God’s Cake
    Sometimes we wonder, “What did I do to deserve this?” or “Why did God have to do this to me?” Here is a wonderful explanation! A daughter is telling her Mother how everything is going wrong, she’s failing algebra, her boyfriend broke up with her and her best friend is moving away.

    Meanwhile, her Mother is baking a cake and asks her daughter if she would like a snack, and the daughter says, “Absolutely Mom, I love your cake.”

    “Here, have some cooking oil,” her Mother offers. “Yuck” says her daughter.

    “How about a couple raw eggs?” “Gross, Mom!”

    “Would you like some flour then? Or maybe baking soda?” “Mom, those are all yucky!”

    To which the mother replies: “Yes, all those things seem bad all by themselves. But when they are put together in the right way, they make a wonderfully delicious cake!

    God works the same way. Many times we wonder why He would let us go through such bad and difficult times. But God knows that when He puts these things all in His order, they always work for good! We just have to trust Him and, eventually, they will all make something wonderful!

    God is crazy about you. He sends you flowers every spring and a sunrise every morning.

    Whenever you want to talk, He’ll listen. He can live anywhere in the universe, and He chose your heart.

    Life may not be the party we hoped for, but while we are here we might as well dance.

    I hope you’re day is a “piece of cake”.
    Al

    June 29, 2006 at 9:18 pm

    My daughter found the forum a few days after I got sick and the feedback and insight helped my family learn about GBS and in turn pass it on to me when I started to get better. It’s a great place and a good feeling to help others going through what we’ve been through.
    Al

    June 29, 2006 at 9:09 pm

    Maybe your son needs a piece of…..
    God’s Cake
    Sometimes we wonder, “What did I do to deserve this?” or “Why did God have to do this to me?” Here is a wonderful explanation! A daughter is telling her Mother how everything is going wrong, she’s failing algebra, her boyfriend broke up with her and her best friend is moving away.

    Meanwhile, her Mother is baking a cake and asks her daughter if she would like a snack, and the daughter says, “Absolutely Mom, I love your cake.”

    “Here, have some cooking oil,” her Mother offers. “Yuck” says her daughter.

    “How about a couple raw eggs?” “Gross, Mom!”

    “Would you like some flour then? Or maybe baking soda?” “Mom, those are all yucky!”

    To which the mother replies: “Yes, all those things seem bad all by themselves. But when they are put together in the right way, they make a wonderfully delicious cake!

    God works the same way. Many times we wonder why He would let us go through such bad and difficult times. But God knows that when He puts these things all in His order, they always work for good! We just have to trust Him and, eventually, they will all make something wonderful!

    God is crazy about you. He sends you flowers every spring and a sunrise every morning.

    Whenever you want to talk, He’ll listen. He can live anywhere in the universe, and He chose your heart.

    Life may not be the party we hoped for, but while we are here we might as well dance.

    I hope you’re day is a “piece of cake”.
    Al

    June 29, 2006 at 9:06 pm

    As you can tell there are a lot of variables with GBS. I awoke one morning with tingling feet and the next afternoon could not walk and was put in CCU, and given IVIG….On vent two days later and in coma for a week….moved from CCU after two weeks to a specialty hospital to wean off the vent…two weeks there and moved to acute rehab for 5 weeks….actually started walking after about 4 days in rehab if 5 or 6 steps a day counts…but of course it does…every day more steps and strength. I was told the sooner you are treated and stop the progression the sooner and faster will be recovery. Depression can do more harm than the GBS…with out the will and desire progress will be slow.
    We are all praying for him and for you. Be strong almost every one recovers from this.
    AL

    June 26, 2006 at 8:54 pm

    The therapists will have your friend pretty self sufficient before she goes home. She will have to bathe and dress herself, use the toilet, get up and down from a chair, and up and down stairs if necessary; and walk. They will have her strong enough to stand and prepare a simple meal. This may sound impossible, BUT last September I went to acute rehab barely able to sit up on the side of the bed. Within 5 weeks I was able to do the things described, and was discharged. There was still a lot of work to go, with out patient and on my own at home therapy. Progress is agonizingly slow and she needs all the encouragement you can provide. Just don’t do everything for her.
    A little story – Occupational Therapy is for dressing, bathing, etc.. I would be scheduled for 7AM and I knew that meant I had to dress myself. My hands didn’t work very well and tingled, very poor grip. Feet had not much feeling other than tingling…so you have to put on those tight medical stockings. Well let me tell you….it took for ev errrrr and produced lots of sweat…and no help from the therapist and I hated it and her.. As time went on it got easier as did walking(you don’t want me to go through that), standing, wheel chairing, walkering, shower chairing……It is important to go to therapy to see what she can do and to learn how to help – the therapy belt is a marvel.
    My caregiver was and is my wife(40 years)(This was the for worse part) and she was wonderful and encouraging – you can walk without that walker – yes! I could – and that is the help your friend needs. Not carrying her around and totally pampering. Of course more help will be needed early and you have to learn when and how to back off. Driving or transprtation may be a big issue, the tharapist will teach her how to get in and out of a car, and down the road she may have to be re certfied to drive.
    YOU CAN DO IT!
    We all here are praying for you and your friend.
    Al

    June 26, 2006 at 8:16 pm

    It seems blood pressure is one of those “growing” pains – as in older. My blood pressure was noted to be “dangerously” high at arthroscopic knee surgery about four years ago. Medication has it under control and while in hospital with GBS last year there was no noticable change, other than when I didn’t get the meds. GBS is so variable I’d not want to say it doesn’t cause high blood pressure, but it may not have been noticed before.
    Al

    May 25, 2006 at 8:47 pm

    I want to tell you don’t be scared…..but you will be and we will be for you.
    We will be praying for and thinking of you and hoping for good news.
    Peace be with you.
    Al

    May 19, 2006 at 2:50 pm

    Hello all.
    I was alpreusk but registered this time as arlingtonal – Arlington Heiights, IL is home!
    We should tar and feather that hacker if we find him/her…..
    The Canadian site was good too…but I found it late.
    Anyway good to be back and able to help…and to see the familiar names.
    Keep on keepin on.
    Al

    May 19, 2006 at 2:44 pm

    Donna,
    The Nuerologist told my wife when she asked how do you get this, “bad luck”. I had mild flu like symptoms for about two weeks prior to “tingling”. I awoke one morning with my feet feeling as if asleep, by the next afternoon I could not walk and was admitted to CCU, two days later – life support.
    The theory here was the sooner we stop the progression the sooner you will heal. I had IVIG and Plasmapheresis…….
    Nine weeks 2 hospitals, 1 rehab hospital, discharged with walker and out patient therapy. The beginning was Aug 2, 2005. I am now doing everything I did before including golf…..my feet and hands are still tingling and I can’t pucker…but hey I can speak, walk, drive, and go without a diaper. Life is good.
    Keep positive. Almost everyone has different rates of progression and recovery.
    Al