Another vaccine victim added to the long list

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This topic contains 17 replies, has 13 voices, and was last updated by  edith 9 months, 2 weeks ago.

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  • #109988

    gslm
    Member

    Finally after months of suffering and endless frustration I have a diagnosis. Just as my neuro and I suspected, CIDP caused by the flu shot I received last fall. Nothing surprising there.

    Now I can be added to the long list of vaccine victims. I have lost the ability to do everything I love. Another life utterly ruined by a flu shot.

    The only silver lining is I have kept the record of the flu shot. With strong support from 4 neurologists I should be able to get compensation from the vaccine court.

    Only if any amount of money could make up my loss.

    #109989

    GH
    Participant

    If you file a claim and are successful, that’s good. I think people with these disorders need all the financial assistance they can get. It does not follow, however, that the influenza vaccine should be made a scapegoat for CIDP and GBS generally. Compared to the many millions of flu shots given annually, the list of people who can associate an acquired peripheral neuropathy with a flu shot is actually quite short.

    #110176

    gslm
    Member

    A quick update. Vaccine fund filed. Now the long wait starts.

    My local neuro said he has seen thousands of vaccines reactions, most are minor but some are severe such as CIDP and the severe ones are definitely grossly underreported for various reasons. My Mayo neuro after hearing my vaccine story said and I quote “it is truly surprising how often that happens”. I am lucky at least my neuro’s are not the rabid denial types.

    So folks, be vigilent. If you suspect your neuropathy is caused by vaccine, follow up with the vaccine fund. They know. Or there wouldn’t be that fund.

    Hope all of you have good results. And don’t let those who refused to acknowledge it to give you doubt and stop you. The fund is there because however they don’t want to admit it they know. Get everything you deserve.

    Best luck!

    #110207

    Cidee
    Member

    So sad to see your post gslm because I relate every word.

    I was perfectly healthy, and happy. Until my gp pushed me to have 3 unnecessary vaccines on the same day. Now I have lost my life. Such a crime they did to us.

    #110241

    jllcidp
    Member

    Cidee, don’t feel sad. You are not alone – it happens to a lot of unsuspecting people. You know you can get compensation right? Have you heard of VICP? You can start from there. It is not as daunting as you may think.

    In the meantime hope your treatment is working for you.

    Hang in there!

    #110794

    ranger1787
    Participant

    I was diagnosed with CIDP in Dec after experiencing tingling and numbness up to my knees in the spance of three days in early Nov of 2014. Surprisingly this was three weeks after getting my annual flu shot in Oct. Of 2014. I do not know if the flu shot was the cause or not but highly suspicious. Is there a way to make a correlation besides timing? It might help with the compensation fund procedings. Was feeling halfway normal after IVIg in Feb but the last four days have been miserable again.

    #110800

    GH
    Participant

    Ranger, numerous studies, some of which are reported in this forum, have failed to find any causal relationship between vaccines of any type, and the influenza vaccines in particular, and GBS or CIDP. Many millions of people receive flu shots each year. If acquired peripheral neuropathies have no connection at all to vaccination, there will nevertheless be some people every year who develop their symptoms a few days to a few weeks after receiving the vaccination. There is no way to tell whether the vaccination actually triggered the disorder. GBS and CIDP tend to start during flu season, so there will naturally be some correlation whether or not there is any causation.

    I had a serious case of CIDP although I had never had a flu shot in my life. Since my illness, I now get a flu shot every fall and have had no ill effects from it.

    Even if it is possible that a few cases could be triggered by a flu shot, the most important factor is a person’s succeptibility to the disorder, which is not understood by medicaal science.

    #110819

    Eric
    Participant

    I’m assuming I’m not the first to make this point but isn’t it possible (probable?) that the whole vaccine argument is backwards? Maybe the real culprit is a flawed immune system. I too had a flu shot about a month prior to getting GBS. I also had flu shots for at least the previous 10 years with no ill effects. But, prior to GBS I had shingles and lyme disease. So, sometimes my immune system worked and other times not. Oh yeah, I got GBS in October, which I believe is during the flu season.

    #111528

    tstratton51
    Participant

    I took the Hep. B vaccine at my job. After that the bottom of my feet went numb and so it began, CIDP.

    #112897

    Karen6542
    Participant

    My father, who was in dialysis, had to have a flu shot in order to be put on the transplant list (all his other vaccines were up to date). Not long after that, he began with the numbness. GBS was diagnosed at first, but when the symptoms worsened, and another neurologist saw him, CIDP was the verdict. he underwwent IVIG and the usual drug therapies, and was in a remission that allowed him to walk without a walker, even to go up short flights of stairs. Unfortunately, this did not last long, and before long, he was in a motorized wheelchair. He ended up in a hospital bed, at home, as my mother would not allow him to go into a nursing home. He died on January 28th, 2014 of aspiration pneumonia.
    None of us knew of that you could get money if a flu shot was suspected of causing CIDP, which my dad’s neurologists strongly suspected. Although money was not an issue (God bless the UAW for getting him such wonderful retirement health benefits from General Motors! If you think unions are harming this country, think of how my dad’s quality of life would have been, had he been shuffled off to a nursing home as a welfare patient, where overworked aides and nurses would never have given him the quality treatment he was able to have with therapists, in home aides and nurses, specialists, the treatments they prescribed, and that wonderful motorized wheelchair), the money my mom could’ve received could’ve been donated for the care of someone less fortunate.

    #113717

    Willis Hammond
    Participant

    My daughter has been diagnosed with CIDP and after 5 IViG treatments she is in an acute Rehabilitation center. Her symptoms began to develop two months ago coincidentally after receiving this years flu vaccine. Our neurologist discounted this connection. When my daughter checked into the rehab. center the nurse told her she was the third patient with these symptoms that had come to the center in the past month. The other two reported onset of symptoms shortly after receiving the flu shot.

    #113736

    rina1953
    Participant

    I had the flu shot December 2014, march 2015 I was diagnosed with GPS, after having 4 relapses I was diagnosed with cidp 2016 and have been in a wheelchair since August 2016, I don’t have health insurance without any treatment i am getting weaker, I’m convinced that I got gbs from the flu shot, any advise what I should do.

    #113739

    Jim-LA
    Participant

    According to the GBS/CIDP Foundation Summer 2015 newsletter “…While its true that that the Flu vaccine can raise your GBS risk …”. The Centers for Disease Control (CDC) website states “… they may develop GBS in the days or weeks after getting a vaccination.”

    The US Department of Health and Human Services created the National Vaccine Injury Compensation Program (VICP) in recognition that, in part, Flu shots can cause GBS and related auto-immune disease.

    The CDC helped found the Vaccine Injury Compensation Trust Fund to provide compensation for those injured. The program is actively administered by the US Federal Court of Claims.

    The studies that are cited about getting GBS from Flu shots deal with the incidence of triggering GBS for the first time. That incidence is very low. However, there are essentially no studies that deal with the incidence of RE-triggering GBS in patients that have already had the disease. I believe the risk of re-triggering GBS is quite a bit higher.

    The bottom line is that a flu shot can trigger the immune system into producing antibodies that attack “self”. “Self” usually refers to the insulation surrounding the nerves called Myelin. When Myelin is attacked some of the nerves short out and we experience many weird symptoms. The condition can be responsible for various forms of peripheral or poly neuropathies (PN), including GBS.

    My neuro recommended not getting Flu shots post GBS/CIDP. Nobody knows with certainty that a flu shot will or will not trigger a new episode of the disease for them. My feeling is that the Flu is a lesser disease and easier to treat than GBS/CIDP. Getting the flu and being miserable for a few weeks pales in comparison to getting a recurrence of GBS/CIDP.

    In my case, the risk of reactivating my CIDP, now in remission, was not warranted to me. I think it is prudent not to take the risk. However, not everyone will feel the same and you must make your own decision.

    There are several attorneys that specialize in VICP related claims. Here is one possibility: http://www.vaccine-law.com/default.htm

    #113753

    GH
    Participant

    Jim, I recognize that you have done a great deal to become well-informed on GBS, but the information you give here is not accurate. It is true that GBS after a vaccination for influenze is now included in the vaccine injury compensation program (a recent addition, I think), but this does not constitute recognition that there is a causal relationship between the vaccine and GBS. The position of the Centers for Disease Control and Prevention (CDC) is pretty much what is has always been: that the cause of a particular case of GBS generally cannot be determined (except in cases of outbreaks due to Campylobacter jejuni), and that if there is a causal relationship with the flu vaccine, it is too low to measure. The risk of getting GBS is the same regardless of vaccination. Here is a link to the CDC on the subject:

    https://www.cdc.gov/flu/protect/vaccine/guillainbarre.htm

    The purpose of the vaccine compensation program is threefold: 1. to encourage reporting of possible harm caused by vaccines (whether actual or not); 2. to promote vaccination; 3. to avoid litigation. It is a no-fault insurance program. For listed circumstances, it is not necessary to prove that a causal relationship exists.

    The National Academy of Medicine (formerly Institute of Medicine) periodically reviews research on the effects of vaccines. There position on this question has not changed. Their conclusions are:

    Causality Conclusion
    Conclusion 6.10: The evidence is inadequate to accept or reject a causal relationship between influenza vaccine and GBS.

    Causality Conclusion
    Conclusion 6.11: The evidence is inadequate to accept or reject a causal relationship between influenza vaccine and CIDP.

    I’m glad that it is now easier for those afflicted with GBS to be compensated under VAERS — any way that people can get financial help with this expensive disease is good — but I object to misinformation which tends to discourage people from getting vaccinated when appropriate. We used to have a few hysterical anti-vaccination types on this website attacking vaccines of all kinds, and I am happy that they seem to have gone into hiding.

    Influenza is a dangerous disease. This season is an especially bad one. In California alone, 27 people under age 65 have died from influenza-related disease. This is at least five times the usual incidence. I personally have been vaccinated for seasonal influenza every year since my illness (seven years ago) without ill effect. I do this for my own protection, but also because I visit hospitals and nursing homes and want to avoid carrying the virus to vulnerable people, and because I know from the extensive research on the subject that the risk of GBS is not increased by vaccination.

    #114047

    ranger1787
    Participant

    In 2014, approximately 2 weeks after getting the flu shot in Late October, I woke up with tingling and numbness in both legs up to the knee. It kept getting worse over the next few days. I was diagnosed very quickly with CIDP and started IVIG with in a month. It did not seem to have any effect, then I gradually started to see less tingling and numbness. It is now restricted to my feet with accompanying fatigue, and occasional other oddities. I applied for compensation through the Vaccine Injury Compensation Program and was able to get a settlement but it took two years and supplying all of my medical reports. There are several law firms that deal only with vaccine related injuries and they do not charge fees. Whether or not the vaccine caused the CIDP is still unknown and I have been told that research has not shown getting flu shots can reinjure you but I still do not get them and avoid hospitals and anybody who appears sick. I have also stopped eating inflammatory foods and started eating anti-inflammatory foods and exercising regularly and I remain stable. So far a positive outcome to a scarry circumstance

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