xochitlcortes

Your Replies

  • November 8, 2017 at 11:59 pm

    HELLO MATTRC77, i just got 5 infusions and will get one every month, its been one week and i feel like you, weak during morning and no improvements

    November 2, 2017 at 3:26 pm

    HELLO Ron, I know what you talking about This Nov 8 2017 its going to be a yer that GBS get me after a stomach flue when i was 58 years on Nov 8 2016,(i have no high blood pressure, no diabetes, no health issues except GBS, but 58 years old) my recuperation its been very slowly i wondering if its because my age. I recovery about 40% of my hands and arms movement but my hands trembles so much to the point I throw my food out of the fork and Im still in wheelchair, my ankles can not hold my body weight, one year in recuperation and counting GBS(getting better slowly). I just got authorised to get five consecutive IVG infusions and one every month, last week I got two and this week two more I had four until today Nov 1 2017 and I dont feel any improvement, to the contrary i feel tire and sleepy.

    November 2, 2017 at 2:08 pm

    Appreciate your reply “GH”

    November 2, 2017 at 1:23 am

    Good evening “Mr or Mss JK” you looks like you are very knowledgeable referring GBS, i will like to talk to you about my case and see if you have any input in my case. This Nov 8 2017 its going to be a yer that GBS get me after a stomach flue when i was 58 years,(i have no high blood pressure, no diabetes, no health issues except GBS, but 59 years old) my recuperation its been very slowly i wondering if its because my age. I recovery about 40% of my hands and arms movement but my hands trembles so much to the point I throw my food out of the fork and Im still in wheelchair, my ankles can not hold my body weight, one year in recuperation and counting. I just got authorised to get five consecutive IVG infusions and one every month, last week I got two and this week two more I had four until today Nov 1 2017 and I dont feel any improvement, to the contrary i feel tire and sleepy.Do you know anything more I can do to improve faster or should i get in the idea of I PLATO.
    Appreciate your attention to this matter
    xochitl cortes

    July 11, 2017 at 2:48 pm

    CH: Apretiate your reply, how long have you been having this condition? do you have GBS?

    July 11, 2017 at 2:43 pm

    AMYOZZY: Appreciate your reply n your prayers keep praying for me please, i keep u in the loop about my condition,
    Sincerely yours
    xochitl

    July 8, 2017 at 11:50 pm

    Thank you for respond cer100, another question is plasma infusion the same as IVIG infusion? im still do not know if they are the same thing or they are two different things.

    July 8, 2017 at 6:08 pm

    hello HeatherMarie, do not wait too long, get a second opinion. I got GBS 8 mth ago, they give me 13 plasma transfusions the second they found out what i had that it was the second day i got to ER, i did little and slowly improvements the first 4 mths after the 4th mth i did little improvements day by day was better, but now i slow down again and the neurologist ordered more plasma transfusions every thee months. Found for second opinion.
    sincerely
    xochitl cortes

    July 8, 2017 at 4:37 pm

    Hello Blammo, like Jim said everybody is different, I got GBS in nov. 2016 they give me 13 plasmapheresis at uci i did started very slow with d results but after the 4th mth i got fast little improvements, now after 8 mths d improvements slow down and the neurologist recommended more transfusions of plasma (plasmapheresis) to re-enforce my immune system. I hope he get improvements faster.
    Sincerely yours
    xochitl cortes

    July 8, 2017 at 4:18 pm

    hello lovelymoth, hows the progress of your husband? I hope he is doing great. I got GBS on nov. 2016, i got 13 plasmapheresis in the icu, i was hospitalize almost 3 mths, they give me physical therapy in bed at that time, i did make some little improvements and they sent me to a skill nursing home where i did a lot of improvements there but now i slow down and the neurologist suggest to get more plasmapheresis transfusions to re-enforce my immune system. So tell me hows your husband doing, prayers for your husband and you.
    Sincerely yours
    xochitl cortes

    July 8, 2017 at 2:58 pm

    Jim im GBS at ICU they put a port in my chest i got 13 transfusions to stop the effect of GBS, now im 8 mths after the first plasmapheresis, im going about 50% in my recuperation, now my neurologist is going to give me more transfusions to re-enforce my immune system, ill post what results and the prosedimients they did.
    yours sincerely
    xochitl cortes

    July 8, 2017 at 1:01 pm

    please keep us in d loop of your progress and if it worth it, i am very interesting in bicouze i will get IVIG and it will help know from someone that is going through.
    Appreciate
    xochitl cortes