SuzyQ
Your Replies
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January 14, 2021 at 9:15 pm
Hi Hedley, I still smoke marijuana, though I only do it at night. I stopped using gabapentin altogether last April…..got tired of feeling like a zombie and gaining weight although it certainly helped when I was in a great deal of pain as did oxycodone and codeine. I’m not using any drugs now and haven’t been since March, 2020.
I believe that incontinence is caused by GBS…..that’s what the research says, especially constipation. Hedley, do you not have a doctor? Your internist can help you as well as a neurologist.
The one activity that’s helped me the most is water therapy, swimming and walking in a pool. It felt so good to walk again by myself (no walker or wheelchair) in the shallow part of the pool. Now, due to Covid, the pool is closed and so is the YMCA, where I was planning to go during the winter.
The YMCA has really great programs to help disabled people such as myself, and most Y’s have an indoor heated pool and have very good instuctors including the American Arthritis Association. I don’t know which state you’re in but I’m sure it has a Y. If I don’t exercise for a week, I’m in a lot of pain, so I exercise daily, walking with my walker outside or pushing my wheelchair inside.
Did you get the little handbook this organization mails you for free? It has some very good information in it. And most people do recover from GBS.
October 8, 2019 at 5:43 pmSandraP, I can highly recommend “3 Kings” or “Gorilla Glue.” Both are marijuanas, THC, that make me feel good, alleviate my pain and sleep very well. I live in a weed-legal state and buy it at a store 5 miles from me. Both of these strains are powerful.
I never, ever drive while smoking weed……i don’t do my bills, i don’t go shopping, i don’t drink alcohol with weed.
I put on soft, easy, love song music while in bed, have a glass of ice water next to me and just take it easy and relax. When I go to the bathroom, I use my wheelchair to get there…..don’t want to take any chances of falling while feeling so good! Just use your common sense and if you don’t know, then use caution when deciding.
On the cover of the AARP Bulletin this month, it’s about marijuana.
October 5, 2019 at 5:38 pmTo Jon Swanson, thanks for recommending ‘Gorilla glue, got some yesterday and it is outstanding! Great for pain and sleeping.
Do you or anyone else have comments about Neurontin? I’ve had GBS for six months and pain clinic doctor wants me to take it.
September 29, 2019 at 9:13 pmMarijuana helps alleviate pain from GBS. I’ve had it since March of this year and it also helps me sleep very soundly. I have nothing negative to say about it.
I began taking Neurontin a few days ago and it relieves pain, too.
September 29, 2019 at 5:36 pmHi there, I’m not post-GBS yet, got it in March of this year. But your post is very informative and positive, so thank you.
