Tagged: Neuropathic Pain and CBD
June 26, 2017 at 1:13 pm #112906JRHINTZParticipant
I live in a state with medicinal marijuana and CBD are legal however GBS isn’t yet on the list of treatable ailments to obtain the products. Who has tried either and what effects both positive and or negative have you experienced? Thank you.
June 27, 2017 at 5:08 am #112912GHParticipant
Marijuana is not a treatment for GBS. It might make you feel better, but only because it makes everybody feel better.
September 29, 2019 at 9:13 pm #117175
Marijuana helps alleviate pain from GBS. I’ve had it since March of this year and it also helps me sleep very soundly. I have nothing negative to say about it.
I began taking Neurontin a few days ago and it relieves pain, too.
November 6, 2017 at 2:56 pm #113494BoltsFanParticipant
Medical Marijuana is not prescribed as a treatment per se as it will not cure GBS or CIDP but rather it will help with pain relief. I was diagnosed with CIDP which is similar to GBS and also live in a state where Medical Marijuana is now legal. My neurologist is licensed to prescribe MM and did to help me with my extreme neuropathy. I am taking high-CBD/low-THC drops and it helps more than any other drug that I have been prescribed (Horizant & Cymbalta) while not having the same side effects. The high-CBD quells my pain for up to 3-4 hours and you do not get high, just pain relief. On Horizant and Cymbalta I felt like hell the next day – foggy brained and lack of focus – and it did not help as much as the MM with my pain.
MM is a God-send for me. The U.S. Government also holds a patent (US 6,630,507) on cannabinoids based on their antioxodent and neuroprotectant properties.
January 25, 2019 at 10:02 am #116253
I’m considering using it. What is the proper balance. I’m not interested in getting high. I’ll use a martini for that if it’s safe to mix…….?? Do you know? But please tell me the proper mix of CBD and THC. What doses are we talking about? Thank you.
December 12, 2017 at 1:48 am #113585
Absolutely agree. CBD has a good effect on neuropathies and epileptics. While useful for many other things, this seems to be the best documented. No problem at all getting it set up, and the high CBD is definitely the way to go. I can feel my legs ease and pains subside within minutes of vaping. I use a tincture during the day and it’s been very helpful. If all you get is a feel better effect, than you’re likely using something too high in THC.
January 25, 2019 at 9:58 am #116252
I live in New York and it’s legal. You mean that we cannot get it b/c it’s not listed? Why the hell isn’t it? Can you verify that?
January 25, 2019 at 12:23 pm #116255
No it won’t cure CIDP but sure deals with the symptoms. Much of the proven work (as best we can guess anyway…) is it’s effect on epilepsy and neuropathies, so worth a try. I can feel the symptoms start to resolve in minutes. A CDB containing creme also works well on isolated areas of itchiness/psoriasis but if it’s a generalized problem best to treat whole body. I use a high CBD tincture during most of the day. Takes about an hour or so to take effect. Vaping works very quickly. So I vape a bit to get to sleep and let the last dose of tincture kick in while I’m (hopefully) sleeping. There is no general dose per se. What works for you. Start low and add…but give the first dose plenty of time to do it’s work or it’s easy to go too high. I know people who use it to treat severe pain like back pain. Doesn’t do anything for me…but for the problems of CIDP it works very well. Find what works for you. May take awhile, but it’s worth it. And no, it’s not just a ‘feel good’ effect. And remember that the parts of the brain that control vital functions like heart rate, breathing, etc. are fairly devoid of cannabinoid receptors. There is no documented case of death by overdose. Opiods are there….and they can kill. Cannabinoids will cause sleep etc. but not much more. 5 Drunk guys will start a fight. 5 Stoned guys will start a band….
January 25, 2019 at 4:13 pm #116256Jim-LAModerator
This topic was first discussed a few years ago here:
Most marijuana-based products do not have approval from the FDA and more evidence is necessary to confirm their safety and effectiveness. There is limited research available on the use of specific marijuana strains for pain and other symptoms. As a result, strain-specific recommendations are not medically proven.
Nonetheless, “Indica” is a THC-dominate (TetraHydroCannabinol) strain considered by many as the best choice for medical use. These strains are selected by patients treating pain, depression, anxiety, insomnia, and more. A typical Indica flower will have between 12%-28% THC and 1%-5% CBD. This works out to 120mg-280mg of THC and 10mg-40mg of CBD. If you tend to feel anxious with THC-dominant strains, or dislike other side effects associated with THC, try a strain with higher levels of CBD.
But dosage varies by delivery method (smoking, vaping, edibles, etc.). Edibles get metabolized by the endocannabinoid system way differently so don’t start out with apples to apples dosage from flower to edibles. When it comes to edibles, I would suggest starting with a very low dose, perhaps 2 or 5 milligrams and slowly increase after 1-2 hours. You will need to wait for some time to experience the effects as THC is processed through the liver before it enters your bloodstream.
Following are some recent educational materials and studies about using medical marijuana to treat neurologic pain:
June 12, 2019 at 1:28 pm #116397
Try the cannabis strain “Platinum Daddy”. I was at my wits end in nerve pain and saw it advertised as helping with neuropathy. A vendor a few miles away carried it (california) and it absolutely worked. It’s the strongest pot I have ever smoked, and will basically knock you out if not carefull.
Im a 7 month GBS patient slowly recovering.
July 16, 2019 at 2:22 am #116460cer100Participant
My neuro suggested trying CBD oil (hemp based, <.3% THC) for my CIDP. They said about half of the patients with it have seen an improvement. The research just isnt there yet.
July 16, 2019 at 4:51 pm #116467
Absolutely. I use a high-CBD tincture. Mixes nicely with a rye and coke…my wife hates rye so she won’t grab it by accident. Takes an hour or so to kick in and lasts for hours. Then something with a higher THC to go to sleep at night and that seems to help mornings. True, no good research yet, but it sure works for me. If I am in pain to start with, then a good vapourizer (check Magic-Flight) works and I can feel the pain in my legs fade in minutes. Best strain so far is Golden Goat.
August 22, 2019 at 3:18 pm #117113Jeffrey RaffParticipant
Hi: I have been using pot for my residuals for 10 years now. At the time I started I was on oxycontine, valium, neurontin and one other I can’t remember now. I was a zombie most of the day. It had reached the point I was on the highest level of neurontin and taking much too much oxycontine. My pain doctor recommended marijuana which had just become legal for medical use. Within 3 months I was off all the pain meds and doing much better. I had my life back. I really believe pot saved me from these drugs and their side effects. I only use pot at night when my pain is at the worst and it helps me sleep as well. I only use indica strains and find they all help.
September 30, 2019 at 12:34 pm #117176SandraPParticipant
In states where MM is not legal, we’re left with CBD oil. But these products are not regulated, and tests done by reputable labs show that many of them don’t contain what the labels claim. Can anyone recommend one that works reliably (at least for you) and seems to contain what the label claims? When products are not regulated, there’s no guarantee of what you’re getting, but personal recommendations may offer some help in choosing. Thanks.
October 8, 2019 at 5:43 pm #117199
SandraP, I can highly recommend “3 Kings” or “Gorilla Glue.” Both are marijuanas, THC, that make me feel good, alleviate my pain and sleep very well. I live in a weed-legal state and buy it at a store 5 miles from me. Both of these strains are powerful.
I never, ever drive while smoking weed……i don’t do my bills, i don’t go shopping, i don’t drink alcohol with weed.
I put on soft, easy, love song music while in bed, have a glass of ice water next to me and just take it easy and relax. When I go to the bathroom, I use my wheelchair to get there…..don’t want to take any chances of falling while feeling so good! Just use your common sense and if you don’t know, then use caution when deciding.
On the cover of the AARP Bulletin this month, it’s about marijuana.
September 30, 2019 at 4:50 pm #117177
Here’s my go to pain relievers after getting off of 3 months of oxycodone initial usage.
Lyrica – down from 150 to 50 mil. max per day due to side effects. At least there is a generic now.
Kratom – down from 16 grams to 8 grams per day of the red vein. There is absolutely no type of withdrawal from this stuff. Don’t trust what the web says, and it is legal except in about 5 states.
Cannabis – the “gorilla glue” strain works the best now, you don’t give a crap about anything. (I’m retired) smoke it all day (San Diego). I remember thinking the THC extracts I used to smoke had given me the disease. Ha Ha
I did use 50/50 CBD/THC vapes which are all over the place in California, and it worked somewhat.
But the gorilla glue trumps it at this point.
I can almost walk normally at 10 months post GBS. Even though feet are still half numb, and two fingers on one hand still numb. I remember when I couldn’t even open a soda bottle. Mentally I feel 100% recovered.
Currently going thru a high dose vitamin D regime as my doctor said it was only 12 out of a 30 – 100 blood test range. I also read on web that the government did a study of people with some type of neuropathic disease and they all had low vitamin D? I do feel better from it.
October 1, 2019 at 8:04 pm #117178DanaParticipant
I too was vitamin D deficient (19). I’ve been taking 5000mg a day and now up to 39.
I see some mentions here of people drinking alcohol. I quit before being diagnosed when this nightmare started. Then I read it’s listed as one of the causes of demyelination so now avoid it like the plague, though I miss having an occasional beer.
October 5, 2019 at 5:38 pm #117196
To Jon Swanson, thanks for recommending ‘Gorilla glue, got some yesterday and it is outstanding! Great for pain and sleeping.
Do you or anyone else have comments about Neurontin? I’ve had GBS for six months and pain clinic doctor wants me to take it.
October 1, 2019 at 8:09 pm #117179DanaParticipant
I’ve never used cannabis in any form. The odor makes me want to vomit so smoking would never be an option but if there’s some hard evidence it helps, I may be tempted to try CBD in some form other than an inhalent however I’m not in a cannabis friendly state. I’ll have to ask my neurogist next appointment.
October 2, 2019 at 1:58 am #117182
I use a tincture so really no smell. Put it in a rye and coke and works just fine. I’ve been very impressed about how well it helps.
December 10, 2019 at 2:33 pm #117330
Lyrica is better, I think most people agree here. I’m still taking 50-100 mils per day. Its dirt cheap now. Less than $40 for 90 pills at Costco using a goodrx coupon. I used to pay $150 with insurance. If I take 3 a day I get an occasional spinal twitch, like a shock. So I use it with caution as that can become permanent. I was smoking pot 24/7 for the pain, but now just at night.
I developed quite a tolerance. I would NOT suggest the cannabis concentrates or the vapes.
January 13, 2021 at 7:43 am #117877
Hello: Has anything changed since you last posted about CBD? Have you continued with relief? What dosage are you taking? I use Gabapentin and would like to change over. But I need to know how much and what brand name to use. Can you help me understand how to get started? Must I visit a Neurologist? Can my Internist help me? Gabapentin is no longer helping and a side effect for me is incontinence. Please write if you find the time.
January 14, 2021 at 9:15 pm #117878
Hi Hedley, I still smoke marijuana, though I only do it at night. I stopped using gabapentin altogether last April…..got tired of feeling like a zombie and gaining weight although it certainly helped when I was in a great deal of pain as did oxycodone and codeine. I’m not using any drugs now and haven’t been since March, 2020.
I believe that incontinence is caused by GBS…..that’s what the research says, especially constipation. Hedley, do you not have a doctor? Your internist can help you as well as a neurologist.
The one activity that’s helped me the most is water therapy, swimming and walking in a pool. It felt so good to walk again by myself (no walker or wheelchair) in the shallow part of the pool. Now, due to Covid, the pool is closed and so is the YMCA, where I was planning to go during the winter.
The YMCA has really great programs to help disabled people such as myself, and most Y’s have an indoor heated pool and have very good instuctors including the American Arthritis Association. I don’t know which state you’re in but I’m sure it has a Y. If I don’t exercise for a week, I’m in a lot of pain, so I exercise daily, walking with my walker outside or pushing my wheelchair inside.
Did you get the little handbook this organization mails you for free? It has some very good information in it. And most people do recover from GBS.
February 1, 2021 at 10:46 am #117886MayloParticipant
Short description about my CIDP:
Got diagnosed with GBS in the first place in 2001 being 11y old, what 19y later turned out to be CIDP when the second wave showed up and is still here in a mild form.
I have just recently experimented with the usage of CBD-ONLY oil and experienced following things:
After 1 week:
– No regular lower back pain
– No regular headache
After 2 weeks:
– Numbness in feet completely vanished for the first time after 13 months straight
– Hands not shaking anymore for the first time in 20y
– Muscles / parts of my body which i wasn’t able to controll or wasn’t aware of it even being possible, were accessible for the first time in 19y
After tellin my Neurologist about my findings of course he asked what I did / changed in the ScIg medication
and I told him that the ScIG medication is the same but I added CBD Oil.
He instantly admitted to it and encouraged me to go on with it since he admitts to the effect of CBD in generall.
What I used:
10% CBD Oil / <1% THC
How i dosed it:
2x 4 drops a day (morning/evening)
I did not experience any “issues” during the day, when taking it in the morning.
I drove my car and did everything without any issues, since it is legal in Switzerland anyways.
Yes, I tested it first with walking / running / sports and can confirm that it doesn’t affect the psyche in any kind of way with this dose.
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