I was lucky, was diagnosed within 6 mos. And only lost my foot, its a permanent drop foot now. I get CIDP treatments (IVIG) Because of my balance issues and other medical conditions, my sister is my caregiver. My family and friends who know that, ask HER how I am doing. I suggest just keep doing what you do. When that happens, just BUT RIGHT IN TO THE CONVERSATION and speak your needs or wants when in public. Your teaching people how to treat the next customer like us. Thank you!

In my experience with CIDP (Lewis Sumner Disorder) Dr. LEWIS now works at Cedar Sinai in CA. Try to get your husband in to see him. He is a great Neurologist and involved in research.