northernguitarguy
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March 4, 2012 at 1:16 pm
Hey Fetterman, you can call me what you want, friend! I’m loving your ‘never say die’ mentality! You gotta tough this demon out!
The guitar-playing is coming along, thanks for asking. Physically, I still struggle to get the hands doing what the brain tells them to. But I have learned a lot by having to improvise and adapt. I’m making better use of some of my effect pedals and have been able to put together some cool tones and grooves. Right now, I’ve been jamming on Stevie Wonder’s Superstition and Soundgarden’s Spoonman with some of the young musicians involved in this year’s charity concert. Lotsa fun jamming with young, energetic and enthusiastic youngsters!
I also streamlined some of my equipment. I realize I wont be gigging any time soon so I traded away my main amplifier for this sweet vintage Yamaha SG. This new toy helped keep the interest alive, plus it checks off a long time want for one of these babies!
My drummer has been going through all kinds of awful stuff as well, cancer and then a hernia because he didn’t heal properly. Then, because he was self-employed, he went broke and finally, he lost his house. But we still rock on, it’s in our DNA. I promise you backstage passes for some future event, but you may need to travel to the local dive to collect! Actually, we want to start doing charity gigs, hoping that we can start and more importantly, end our gigs at a reasonable time. I have a hard time seeing us packing up amidst the drunks at 2 AM! Here’s a clip we recorded last summer before his last surgery, he’s just starting to get behind the kit.
Stay in touch
March 2, 2012 at 3:53 pmYOU are a BEAST!!
Rock on Tom!
February 24, 2012 at 3:44 pmBrad, guppy
A GBS jam, that could be fun. ‘Sludge’ rock for sure!
February 24, 2012 at 3:41 pmThanks limekat, right back at ya!
February 24, 2012 at 3:59 amhey ford
February 22, 2012 at 11:07 pmKeep at it Dave, some, if not all of a lot of what you lost will likely return. I still struggle with playing the axe, but it’s a far cry from where I was. I remember slinging on my Les Paul (10 lb. guitar) and very nearly falling over forward because of the weight! Not to mention the strings felt like I was playing on the edge of knives. But I am a lot better.
Some of us have met folks who have fully recovered (they don’t hang around here, and I don’t blame them). But recovery appears to be different for everyone. It sounds like you are on the right track! The gym is a great idea once you have the strength. I enjoy the pool myself. Another lovely therapy has been massage. This has offered some fantastic relief and helped at times to improve mobility.
Best is to avoid doing NOTHING! Any effort you put towards recovery is admirable and every ounce of success should be fully celebrated. Stay cool!! 🙂
February 22, 2012 at 10:58 pmI hope you are all as good as can be. The violin will be a great start! Then you can get an electric guitar into her hands when she’s ready to shred!!
Good for Emily!
February 22, 2012 at 6:52 pmNorthernguitarguy….good to have you back. I’m a bass player with GBS, so if you ever make it to Long Island perhaps we could have a GBS jam~! Neuropathy rock~
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Hey guppy, thanks it’s good to be around again! We’ll have to play something reeeeaaaal slow!!!
February 21, 2012 at 9:50 pmFor the non-believers out there, you might gt just enough back to satisfy an urge-don’t give up!!
February 21, 2012 at 9:44 pmHey Hedley, long time, no talk. Sorry you are on the bummer, how I wish things could be better for us all. I understand that waiting for full recovery is difficult. And I can appreciate your bitterness. Like Tom said, I’m not sure it will help, but it is understandable.
February 21, 2012 at 3:21 pmHey Dawn and everybody else!
Thanks for asking. I have still been playing, but the fingers still struggle. I haven’t been able to put my band back together as my playing is too unreliable…..but I haven’t quit! I’m hoping that once the weather warms up, I wont be as stiff or fatigued. Stay tuned.
I hope you all are as well as you can be!
NGG
February 21, 2012 at 2:53 pmIt aint a party without some guitar!!
August 21, 2011 at 8:27 am[QUOTE=Beachcomber]Hi alk630,
It might be a difficult thing to prove because GBS and CIDP as well as alot of other conditions are done through a process of “ruling out”. It took them several weeks to figure out mine and I was was sent home with a pinched nerve . After a couple years of CIDP I ended up back in the hospital again with what I thought was another relaspe only to find out I had another auto immune condition that has alot of the same symptoms called Transverse Mylitis . It can be very frustrating because I think we often feel like they should know because they are the medical educators , however as we know every case is not a cookie cutter one 🙁
Kimberly[/QUOTE]
my father figured out more about GBS on his i-phone than the ER doctor knew…..GBS cases are quite different than CIDP, thankfully it’s not chronic but the timeframe for diagnosis is much shorter…..doctors must do more for GBS patients in the chronic phase….there is no excusing them for not doing moreAugust 16, 2011 at 12:41 pm[QUOTE=tnash]Making a prognosis about recovery is impossible. Recovery begins as suddenly and inexplicably as when GBS symptoms appear. The symptoms disappear gradually, but may take weeks, months or years to do so. The course of the disease varies for each patient. Recovery takes 3-6 months for most patients, and about two-thirds of them recover completely.
As numbness, tingling and pain disappears, strength returns to the affected areas of the body, in the opposite order of succession as when the symptoms appeared. This means that in most cases, the arms and legs will regain their strength before the legs do, while right-handed patients may experience that strength returns to their left hand before their right, and vice-versa.[/QUOTE]
I’m going to challenge the 3-6 months recovery, but not to be a pain in the bumI am around 14 months and I am night and day different from where I was at 6 mths. As well, at the recent GBS conference I attended in Toronto, GBS patients who had recovered told me not to count out more in the coming years., I can even account for some hand recovery in the past 2 months.
Don’t give up!
August 14, 2011 at 12:44 pm[QUOTE=Anastasia52]I wonder if those folks on the Arizona/Mexico border were bitten by scorpions. I am reasonably sure that a scorpion bite I sustained in Mexico (different part, though), together with tons of aedes aegyptus bites, and a stomach virus, caused my CIDP. These events occurred right before the onset of my CIDP.
In fact I mentioned this to Dr. Burt as part of my stem cell evaluation and he was quite interested in the relationship.
Sharon[/QUOTE]
Hey SharonAgreed, but unless these communities have been overrun with scorpions why this cluster?
