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I see to be going through that right now, last two full loading doese did nothing and if anything, I have regressed.
i was/am treated by Dr Niranjanan Nirmalananthan at St.George’s Hospital and would have no qualms recommending him.
His secretary’s phone number is 020 8725 4630 if that is of any help to you?Dr Niranjanan Nirmalananthan
Consultant Neurologist
Contact
Secretary: Anna JonesSecretary email: anna.jones0@stgeorges.nhs.uk
Secretary telephone: 020 8725 4630
Clinical interests
Dr Nirmalananthan’s main specialist interests are in neuromuscular disorders and headache disorders. He runs weekly regional specialist clinics for nerve and muscle disease and headache. In addition he sees general inpatient and outpatient neurology at St George’s. His main academic interests are in neurogenetics.Professional profile
Dr Nirmalananthan is a Consultant Neurologist at St George’s University Hospitals NHS Foundation Trust and Honorary Senior Lecturer at St George’s University of London.Dr Nirmalananthan graduated in Natural Sciences from Cambridge University before studying Medicine at King’s College London. He was awarded a PhD in Neuroscience from the Institute of Neurology, University College London before undertaking higher specialist training in neurology at St George’s Hospital and the National Hospital for Neurology and Neurosurgery in London.
He is currently Clinical Lead for Neurology.
Prizes, memberships and fellowships
Lord Adrian Prize, British Society for Clinical Neurophysiology, 2009
Sir Charles Symonds Prize, Association of British Neurologists, 2007
Medical Research Council Clinical Research Training Fellowship, 2005-2008
Member, Association of British Neurologists
Member, British Society for Clinical Neurophysiology
Member, British Peripheral Nerve Society
Member, British Association for the Study of Headache
Member, International Headache Society
Member, Royal College of Physicians
Editorial board member: Frontiers in Genetic DisordersI have CIDP and my symptoms tend to ease a fair bit in the afternoons, only to then return in the late afternoon/early evening
They don’t go completely but do ease a fair bit some daysI am No expert by any means, but the standard treatment seems to be IVIG and or steroids.
Ask your doctors about that is what I would suggestDo keep an eye on it though, as i found that it got more intense and then I had trouble with standing and balance for a time, that then eased.
You may well not get that at all, Each of us seem to present with unique symptoms, with some similarities with others.
So what I have experienced, you may well not .Yes it’s a symptom, and a damn annoying one at that.
I get it more in my feet, but have had it travel as far up as the pit of my stomach, backside etc
I feel it is the nerves sending signals down damaged or affected nerves, making the muscles contract and relax 100s of times a minute.
That’s my theory anyway