Appreciate help finding a CIPD Neurologist.

    • December 27, 2017 at 11:55 am

      Athol Birch. Algarve Portugal
      Firstly I should like to thank those running the Foundation for doing such a great job. It was comforting to find out that I was not alone in dealing with my problem.
      I am trying to find a good Neurologist who has experience of dealing with CIPD in London, England.
      I was diagnosed with CIPD a year ago.This was done by a Dr. Manji from the National Neurological Hospital in Queens Square, London.
      He was good but as my home is in Portugal he felt it was not safe to treat me at a distance.
      Also I found it difficult to communicate with him even whilst in the UK. I was willing to return for assessment or treatment at regular intervals. Therefore it would be helpful to find someone who is flexible and willing to deal with patients from abroad.I am at present on Prednislone 20mg. per day.
      I have experienced definite improvement but am now going backwards with regard to symptoms and weakness. I was put on to azathioprine 50 mg. per day which unfortunately played havoc with my stomache. I had to stop.
      My Neurologist in Portugal is at a loss as to what to do next!
      I have found the name of Dr. Michael Lunn on this site. Has anyone been treated by him?
      Either way I would appreciate any information with regard to finding someone in London.

    • December 27, 2017 at 12:16 pm

      i was/am treated by Dr Niranjanan Nirmalananthan at St.George’s Hospital and would have no qualms recommending him.
      His secretary’s phone number is 020 8725 4630 if that is of any help to you?

      Dr Niranjanan Nirmalananthan
      Consultant Neurologist
      Secretary: Anna Jones

      Secretary email:

      Secretary telephone: 020 8725 4630

      Clinical interests
      Dr Nirmalananthan’s main specialist interests are in neuromuscular disorders and headache disorders. He runs weekly regional specialist clinics for nerve and muscle disease and headache. In addition he sees general inpatient and outpatient neurology at St George’s. His main academic interests are in neurogenetics.

      Professional profile
      Dr Nirmalananthan is a Consultant Neurologist at St George’s University Hospitals NHS Foundation Trust and Honorary Senior Lecturer at St George’s University of London.

      Dr Nirmalananthan graduated in Natural Sciences from Cambridge University before studying Medicine at King’s College London. He was awarded a PhD in Neuroscience from the Institute of Neurology, University College London before undertaking higher specialist training in neurology at St George’s Hospital and the National Hospital for Neurology and Neurosurgery in London.

      He is currently Clinical Lead for Neurology.

      Prizes, memberships and fellowships

      Lord Adrian Prize, British Society for Clinical Neurophysiology, 2009
      Sir Charles Symonds Prize, Association of British Neurologists, 2007
      Medical Research Council Clinical Research Training Fellowship, 2005-2008
      Member, Association of British Neurologists
      Member, British Society for Clinical Neurophysiology
      Member, British Peripheral Nerve Society
      Member, British Association for the Study of Headache
      Member, International Headache Society
      Member, Royal College of Physicians
      Editorial board member: Frontiers in Genetic Disorders