GBS relapse?

    • March 11, 2016 at 6:21 am

      hi all you mums and dads out there with kids with GBS/CIDP. Was wanting to see if anyone had similar symptoms.
      1. Can’t bend knees and walks like a zombie, one leg swings out to the side – however this only last for a few hours, then he comes good again
      2. stomach cramps – comes and goes
      3. hands in a pinch like form and won’t open – comes and goes also
      4. fatigue – comes and goes
      5. dizzy – comes and goes.
      All of the above come and go on a daily basis at the moment. He has recovered from GBS with full paralysis then recurrent GBS (doctor’s called it that)last year.
      Just wanted to see if any other kids are ‘symptomatic’ for a few hours and then running around. Very strange.
      Thanks heaps.

    • March 11, 2016 at 7:36 am

      I have CIDP and my symptoms tend to ease a fair bit in the afternoons, only to then return in the late afternoon/early evening
      They don’t go completely but do ease a fair bit some days