anxiety or a symptom?

    • February 1, 2016 at 11:26 am

      Hello – I am newly diagnosed with peripheral neuropathy but when at rest I feel vibration throughout my body. I feel it when I relax my body when going to sleep and then again in the morning. It comes and goes, but is quite contant when at rest. I’m quite certain it’s not “all in my head”. This has been going on for a couple of months, althouh my Dr. thinks it is anxiety because my blood tests and brain MRI are normal. I did fail an EMG and that’s why they’ve diagnosed it as PN.

      I am trying to get an appointment with a specialist who treats CIDP but soonest is in May.

    • February 1, 2016 at 11:48 am

      Yes it’s a symptom, and a damn annoying one at that.
      I get it more in my feet, but have had it travel as far up as the pit of my stomach, backside etc
      I feel it is the nerves sending signals down damaged or affected nerves, making the muscles contract and relax 100s of times a minute.
      That’s my theory anyway

    • February 1, 2016 at 11:56 am

      Thank you! Yes … starts in feet and moves throughout my body. Not painful … just scary!

    • February 1, 2016 at 12:00 pm

      Do keep an eye on it though, as i found that it got more intense and then I had trouble with standing and balance for a time, that then eased.
      You may well not get that at all, Each of us seem to present with unique symptoms, with some similarities with others.
      So what I have experienced, you may well not .

    • February 1, 2016 at 12:04 pm

      Thank you again! I’m having serious problems with balance and gait, muscle weakness, pain in knees, tightness in ankles and foot drop. Lots going on! Walking is becoming most difficult, but they are telling me it’s peripheral neuropathy and there’s no treatment. I want to investigate further.

      • February 1, 2016 at 1:08 pm

        I am No expert by any means, but the standard treatment seems to be IVIG and or steroids.
        Ask your doctors about that is what I would suggest

    • February 1, 2016 at 12:16 pm

      I have this symptom too from time to time. It us usually in my neck. I tell my neurologist it feels like someone is holding a tuning fork vibrating on my neck. It is annoying!! It usually happens when I am close to the time when I need my next infusion so the IVIG must be wearing off. Nothing I can due but rub my neck to try to take the vibrations away or at least ease my tense muscles and take my mind off the vibrations.

    • February 1, 2016 at 1:16 pm

      Thanks for this! I hope to get in to see a specialist asap!

    • GH
      February 4, 2016 at 2:16 pm

      If you are losing strength and balance, May is much too long to wait to see a specialist! Generally, earlier treatment leads to better results. You need proper diagnosis and treatment as soon as you can get it.

    • February 4, 2016 at 2:38 pm

      Thank you! I was able to make an appointment with a different specialist … will see her 2/16. She treats CIDN and similar neuro muscular diseases. Am taking all test results. Very appreciative of your warning! Thank you again.