I was under the impression that drugs like oxycotin and tramadol didn’t do much for nerve pain and that they wanted to lean more toward things like the Lyrica. It seems like that’s alot of narcotics to be on. Where does your quality of life go when your so full of mind altering drugs? Sometimes having CIDP just sucks! {Sorry, must be the ‘roids talking.}
Is there really a big difference in what pain meds work better or does it come down to things working different on each person?

I’m with Flossie on the vitamins and also drink lots and lots of water to keep everything flushed. My doctor suggested which vitamins to take and the amount of colds I got went down to a few a year. You need to remember to avoid sick people. It’s put a damper on your social life but that’s a small price to pay. Hope you feel better!

I am so blessed that here in Spokane I was recieving the IVIg and the hospital was eating 75 % of my balance after medicare. I’ll be paying $75 a month the rest of my life to the hospital, lol, but at least I had access to the drug when I needed it.

I’ve been on two years now, no head-aches or other side effects that I can tell. Doing the 200 mg in the morning and about an hour nap in the afternoon. Compared to sleeping my life away I’m extremely happy with it, and I haven’t had to increase the dose. I’m doing 1000 mg of Solu-medrol Iv treatments every 6 weeks, come home from the treatment and sleep 24 hours, so maybe I’m not of the norm,lol, and not a good example to go by. I figure if it helps me have more of a life, great. Imagine what all those steriods are doing to my body, I guess what I’m saying is everyone is different and you have to weigh in quality of life to possible side effects.

There’s nothing wrong with a good long nap,lol. After two years of not knowing what was wrong I was refered to a great neuro, the IVIg haven’t been working for me any more so I’m doing monthly doses of IV solu-medrol and daily doses of Cellcept. While I’m not dancing on tables, I’ve learned to consentrate on what I can do. It’s been four years and while I still get the occasional pity party days I try to keep an eye on the possitive.
Having a good doctor helps but also knowing these forums are here. Even if you are like me and don’t put your two cents in very often, you can read through for info and just a feeling of support. With time and understanding the feelings of fear and dispair give way. It does get better! Good luck.

Hello Vic, I’m 43 and like you deal with alot people looking at me and thinking I’m fine health wise. That is until I start to walk, been having a problem with my balance lately, lol. You’ll not only find alot of information here but alot of support. Everyone is great, we all need someone to lean on sometimes.
Hey Dick S, I liked the quote. I printed it out and put it on the fridge, as I’m doing steriods now I spend alot of time there!

I did the prednisone off and on {mostly on} for ten years before I started having problems with my bones, broke a leg then my arm. Was doing caltrate 600+d once daily and Fosamax. Have been off the steriods except for 3-two day treatments for side effects since last July. Now doing the caltrate twice a day with the fosamax and my bone desensity tests are showing no more damage