I’ve been wondering as well…
Jim???

Hi. GBS in fall of 2012. My “system” has never been normal, at least not for any reliable stretch of time,and post-hospital experience hasn’t much different. It did stop for a couple of months. I have been wondering about this topic, though, and my Mom will not talk about health matters for more than a minute. Periods have generally been light-to-medium and 3 to 5 days in length.
For the last two days my period has been very heavy. I’m getting close to “that age”…Is this some kind of “last hurrah”? (Day 1&2; nothing else out-of-place.)
And I seem to get the “dropsies” (pens won’t stay grasped) in the PMS days. Anyone else get this?

For me, the fear of falling down the stairs and the concentration not to took as much energy as going up did.

I searched the net for disability disclosure laws-Australia and found DREDF (1992). (Looked at it long enough to see if it is similar to the US ADA (1990/1), but not so much to confuse myself.) [I only knew about the ADA because I took a series of classes in college for “students with disabilities” right as that law was enacted. I have a pre-GBS disability…]
One website I’ve referenced is http://askjan. That is short for Job Accommodation Network. It is US info, but you can get ideas on how to approach things.
Those should help with employers. I’ve tended to be as honest and communicative as possible without going into too many details. I’ve said something like, “My condition continues to improve” and if it comes up: “Based on all of the research I’ve read, there’s very little chance of relapse.”
Colleagues…you don’t have to tell them anything. What I have said is, “I have something like MS but in reverse.” I’ve been careful to not abuse bathroom breaks, not take one minute extra of break times, drink only water, and be diligent and hard-working. That was always the way I was, but I don’t want to give anyone a reason to complain…

I hope this makes sense…
Pacing yourself (with an autoimmune condition) is a fluctuating learning curve. No two days are alike. Well, maybe they are, but it doesn’t seem like it. Early in my recovery, I could barely stay awake for a trip to the grocery store. I felt like an idiot. Now, I rarely take a nap.
It helps to be self-aware, able to see your situation objectively. If you need to, keep a log book- like you would for weight training or conditioning. Include what you do, how you feel during/after (exhilarated, fine), “external” things such as humidity/hormones/meals…I’ve studied exercise enough also to see how curious it is from a patient’s viewpoint. On days when you are extra frustrated, review this log book to see how far you’ve come. All I need is to remember being unable to move, or even, when stepping off a curb, how I used to need to hold onto a street sign, a pole, or even the hood of a stranger’s car (alarms be damned-but none ever went off).
Pacing: eating a slice of cake per day for a week vs. the whole cake at once. Reading a chapter of a book per day vs. speed reading the whole book in a few hours.
I used to be able to work circles around people around me. I’m okay (for now) with knowing how hard I’ve worked to even try to keep up. It is like going from being a 100watt bulb to being a dimmer switch with loosening wires.
Be kind to yourself. Challenge, don’t punish. If you have a mile route to walk near your home, have a shortcut home if you realize you’re more tired than you expected. Once that is consistent, add an extra mile or 1/2.
So…if I know I have a “big day” tomorrow, I’ll walk a little less today. If the humidity is 100% (which saps all of my energy), I’ll do heavier housework inside as exercise.

I found an article today in Forbes by Sarah Vermunt: Too Ambitious For Your Own Good? Three Tips For Pacing Yourself. (Aug 6, 2013) [I’d include it, but tech isn’t my strength…]

If you have not yet, check YouTube for videos about applying for SSDI. There are several from my state’s Department of Education and Economic Development, so there are likely to be some for others.
Now I need to look for some videos on how to survive and thrive on very little $$.

Hi, I have noticed that after a even a little cold or any physical stress (walked toooo long yesterday, ate something that didn’t agree with me), heck- plain-old-stress, that I’ll feel the pins-and-needles/numbness. The worst is when winter digs in and I didn’t protect my hands/feet well enough.
But that’s just me.

Awesome! I’m a spaz for knowledge.