Your Replies

  • September 22, 2014 at 12:40 pm

    JDB, I’d suggest you read GH’s posts from the past. You can learn plenty. I know I sure have.

    August 6, 2014 at 11:25 am

    I agree with GH. I left the hospital 1/24/13 after 14 weeks. I too have pins and needles. But, thankfully, I can walk, albeit with a bit of a limp.

    March 19, 2014 at 11:48 am


    Having had both, I definitely agree with Jim.


    November 27, 2013 at 6:49 pm


    If you’re like me it will slowly get better. I’m a bit over 13 months and I still have to balance myself whenever I get up. However, it’s much better than it was last month and the month before… Just keep on grinding forward.


    August 3, 2013 at 3:54 pm

    Lynette, I think my experience is different but not worse than your husbands. While he was suffering with the early onset of GBS, I was not feeling it. However, once I woke up…

    I had an interesting talk with my GBS doctor. He feels that GBS is like a tornado blasting through ones body. It’s not GBS we’re dealing with mostly, but the damage it left in its wake. So, with therapy a complete recovery is still possible. I find that encouraging.

    Finally, a word to you. Being a caregiver is tough. Only those of us who have benefited from people in your role really get it. Hang in there.


    August 3, 2013 at 12:06 am

    Lynette, it was 10/15/12. However, I spent 14 weeks in the hospital, the first 7 in a coma. So, I’m not the best source for how long it will take for your husband to get better. The best advice I can give is for him to work diligently at his therapies and not get discouraged. It’s not easy, but improvement does come. I try to compare my progress over 2 week periods. That has worked for me.

    August 2, 2013 at 12:03 pm

    I find sitting up as straight as possible (as if he had a bad back) provides a bit of relief. For me, time has reduced the frequency and severity.

    Good luck,

    June 12, 2013 at 7:56 pm

    I spoke to my wife and if you wish she will contact you. I don’t remember anything that was happening at this point in the process.


    June 12, 2013 at 6:52 pm

    I responded in success story forum. Please let me know if there is anything I can do.


    June 10, 2013 at 11:43 am

    I was in Charleston,SC at Kindred Hospital . It worked for me.

    June 9, 2013 at 11:30 pm

    I can only relate my experience. I hope this helps some.

    With no prior symptoms, I was diagnosed with GBS on 10/15/12 and went into a coma on 10/16/12 which lasted about 7 weeks. I was on a ventilator for a good portion of that time. A couple of weeks later I was transferred to a rehab hospital which lasted 5 weeks. Next I went home. Currently, I attend OT and PT twice a week. My mind seems okay (my sons might argue otherwise). I can walk some with braces and a cane. I hope to continue to improve.

    Good to luck to your Dad and your entire family.