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When I was a little over 3 years I had another round of P/T specifically directed at improving my balance. It really helped. Though you will never find me on a balance beam, I now get up without holding onto the nearest stable object. And, in the last 8 months I have not fallen at all.
Eric
Here’s my timeline as I recall.
10/15/12 – Went to hospital slurring my words. Otherwise,felt okay.
10/16/12 – Coma begins. I think they added the vent then.
12/10/12 – Wake up. Not exactly sure of the date. Pretty close since it didn’t seem that long before they shipped me to rehab hospital.
12/19/12 – Arrived at rehab hospital. At this point the only movement I had was being able to touch my right ear with my index finger. My left wrist was limp and my right foot was dropped.
1/24/13 – Went home. I was able to go maybe 50 steps using a walker. I needed assistance to get up to use the walker. I used a fork with extensions.
1/29/13 – Started out-patient OT and PT.
2/15/13 – Graduated from the wheelchair. Was able to get up on my own to use the walker.
4/15/13 – Graduated from walker. Had an ankle brace on my left leg, a brace from my knee to my ankle on my right foot, and used a cane with 4 legs.
4/19/13 – Had first movement of the wrist. 3 days later my OT measured it a 19 degrees. Not much but a major highlight.
5/31/12 – Finished OT. I am still doing at least half of the exercises daily. My left wrist works fine but it still is not as strong as the right one. Also, on this date I started water therapy.
7/31/2 – Finished PT. I was able to walk unassisted though with a noticeable limp.
12/15/15 – Started balance therapy. As far as I understand, the muscles we develop as we learn to walk (and before that) as a child lose their tone after all that time I was not able to walk. With the daily exercises I was given from the PT, my balance has improved dramatically. Now I can just get stand up without feeling I might fall. As an extra benefit my PT corrected the way I relearned to walk. My right foot is now doing heel to toe. I was walking flatfooted so as not to fall. That style is no longer necessary.
8/15/16 – Currently, my arms from my shoulders to my wrist work fine but always feel a bit stiff. Sort of like waking up and needing to loosen up. I don’t have all the feeling back in my fingers but I can now do normal buttons but don’t ask me to pick up a penny from a table. As I mentioned before my left wrist works fine but is slightly weaker. My right leg from my knee to my ankle aches a bit all the time especially at night. Most of the time I can ignore it. I do lose a couple of nights sleep each month. My right ankle is somewhat diminished but considering it didn’t work at all I’m quite pleased with its progress. And as all of use know, we learn to live with uncomfortable feet. I assume my are no better or worse than the rest of us.I hope you find this helpful.
Eric
I had absolutely 0 movement in my left wrist for 6 months and 4 days(who’s counting). But, the next day it moved a bit. The day after that I had OT and she measured the movement at 19 degrees (which isn’t much but it is not 0). That was late April 2013. Today, I have complete use of the wrist with slightly less strength. I still do my OT exercises daily so that maybe someday all the strength will return.
Keep up the support. He’s lucky to have you.
Eric
Here’s something I found comforting early on (I wasn’t alone in how I felt) and I hope it helps you. When I first was able to use a walker I would get up after sitting a awhile and those first couple of steps were awful. The feeling was like my calves were going to tear. Well they never did. And pretty soon that went completely away. Hope you find this helpful.
Eric
I was loaded up with all the shots in September 2012. My granddaughter was born 10/1/2012. I got GBS 10/15/12. I’ve never received a vaccine since September 2012. My grandson was born 7/13/2015. I have been baby sitting regularly from the first week. My grandson is okay. Me too.
Good luck. It’s going to be a tough call. But, for me, I’d rather wait awhile to see the grandchildren than go through GBS again. I hope you don’t have to make the choice.
Eric