Ann-Marie Hosey
Your Replies
-
December 13, 2018 at 7:32 am
Thanks for your reply. Yes, it does sound right that my immune system would be better now that I am receiving IVIG. Sometimes I think the dentist just wants to cover themselves. I will have to ask my neurologist this question when I see him. I hate taking antibiotics and having all the side effects that go with them.
November 13, 2018 at 7:10 pmI have had a hypotonic bladder for about 15 years since my first back surgery. I empty my bladder by contracting my abdominal muscles. Since being diagnosed I have trouble emptying my bladder period. It is so troubling. I just started Flomax and it helps quite a bit. I asked the neurologist if it was possible that CIDP is affecting my bladder and he said he never heard of it, but it was certainly possible. I also have become extremely constipated, thinking that cidp has affected my intestional nerves as well. I just wonder what’s next.
November 13, 2018 at 6:55 pmThank you so much for your reply. I really thought I wasn’t loosing my balance as much but for sure that was only wishful thinking!
November 12, 2018 at 4:33 pmI just finished my first month of IVIG. It was 4 days in a row at an infusion center. I also have terrible veins, but was thrilled that the center left my IV in for the 4 days. They flushed it with heparin and put a cap on the end.
My doctor mentioned that I may be able to start home infusions if they go well. I am not happy about that idea for a few reasons. My BP went very high and the rate had to be slow. I also had a vicious headache by day 4. I’m thinking that if a home infusion nurse wants to rush along, she won’t keep it slower because of my BP and headache. Also, if she can’t start the IV, I could see my husband going crazy since he is a paramedic and has been doing them all his life. Most healthcare providers wouldn’t let him start the IV. Plus, I would feel compelled to talk to this person the entire time. I would rather go to the hospital infusion center.
