I started IVIG last week with 4 days of IVIG. I received a loading dose and will continue with half of what I received in another month over 2 days. I will receive this dose for 5 consecutive months, however I see my neurologist after 3 months. He told me he expects to see some improvement in 3 months. How long after receiving the first dose of IVIG has anyone seen an improvement? I thought I was actually loosing my balance less after only a few days, but that was short lived after I almost fell in my garage. My children seem to think I would be running marathons within a few days! I wish! If you did see improvement, what did you see first? Thanks for your help..
My doctor is still trying to work out the correct IVIG dosage and frequency for me, but I do have some experience that might be relevant to you.
After I’ve gotten high-dose IVIG treatments (lasting 2-3 days), I have typically found that my strength and balance start feeling normal after about 7-10 days. The tingling has been unpredictable, coming and going as it pleases. And as for the autonomic reflexes (i.e. when the doctor hits your knee with a mallet), that may take 4-6 months to come back. The trick with CIDP is to find the maintenance (smaller) dosage that keeps the symptoms from returning before you get treated again.