Newly diagnosed

This topic contains 3 replies, has 3 voices, and was last updated by  Ann-Marie Hosey 1 month ago.

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  • #116128

    Ann-Marie Hosey
    Participant

    I was just diagnosed with CIDP and am awaiting insurance approval to start IVIG. I have several back issues and have had a hypotonic bladder for years. It has suddenly become worse over the last 4 months. Does anyone else have bladder involvement?

    #116147

    BryanF
    Participant

    When I came down with CIDP, I noticed that when I have to urinate, it is a right now situation and at times, I have to urinate frequently.

    Never had that before I can came down with CIDP.

    #116160

    Buzz
    Participant

    This is very interesting. I never put the two together. I’ve been on Vesicare for a couple of years due to weak bladder. I was diagnosed with CIDP 12-2017, and have been receiving IVIG since 02-2018.
    Just yesterday I went to my GP to see if there is anything stronger/better than Vesicare that seems to no longer be working. I have to go constantly. Guess I should discuss it with my Neurologist too.

    Buzz

    #116164

    Ann-Marie Hosey
    Participant

    I have had a hypotonic bladder for about 15 years since my first back surgery. I empty my bladder by contracting my abdominal muscles. Since being diagnosed I have trouble emptying my bladder period. It is so troubling. I just started Flomax and it helps quite a bit. I asked the neurologist if it was possible that CIDP is affecting my bladder and he said he never heard of it, but it was certainly possible. I also have become extremely constipated, thinking that cidp has affected my intestional nerves as well. I just wonder what’s next.

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