I have been on IVIG since 2009 for CIDP. I was diagnosed with small cell lymphoma in 85% of the bone marrow. The oncologist prescribed Rituxan once aweek for 4 weeks. They now have it set up for me to receive 4 treatments every 6 months. I had a problem a few months ago with the billing for the IVIG treatments. My doctor said I had improved since being on Rituxan and wanted to stop the IVIG treatments for the time being and if I started going downhill then he would start IVIG back again. My last treatment was at the end of December and I have not noticed any difference. I have not had any side effects from the Rituxan except occasionally Benedryl legs.
I will be receiving my first Rituximab treatment in two weeks. I will have two treatments every six months. I was told it could take up to a year for some people to
respond and sometimes it doesn’t work at all. The brain virus side effect is frightening and all the other potential infections one can get due to the immune system weakening. My immune system is already compromised. I’m hoping for the best and will report on how things go.