Residual effects of GBS

Hello,

I was diagnosed with GBS around 3 years ago. That was life changing. The doctors told me I could get back to near 100% back then, but I now do not believe that now, as I am not even close. Can GBS come back again? There are days I am very shaky and weak, and sometimes if I’ve been in bed for a while, when I get up it hurts a bit and my lower legs are very stiff, so I have to take baby steps until I loosen up.

I also have extreme sweating issues which have only gotten this bad since GBS. Even in temperatures in the low 60s, there are times I sweat all over and drench my back, waist area, head, and face. This will happen when I’m doing things that require little to no physical activity. I was vacuuming for example, temperature was mid 60s at most, and it was like I had run a marathon. I get out of breath so easily, even from just walking from my car into work and coming down an elevator. Little things like bringing in groceries from my car cause that also. I also wake up almost every single night in the middle of the night, and this has been happening since GBS. Iam at a loss with getting help from doctors. My doctor seems to think a lot of my issues are due to my weight (I’m overweight but definitely not obese). I highly doubt that is the sole reason for this. I had the same issues before I got heavier, and I only got this heavy recently because I have not been able to work out. I’ve also known people much heavier than me and none have had these issues.

I think my issues are all due to GBS. I am worthless because of this. It is getting near summertime, and I cannot even do anything outside because I sweat so horribly and get out of breath so easily. I have to sit inside one room by an AC unit the entire summer. My doctor cannot find an answer to this. The last time I saw a neurologist, he thought I was fine because my strength was apparently decent enough at the time. I wish I would’ve seen him on a bad because there are days I am weak and very shaky. He did not have an answer for the sweating/overheating and the shortness of breath.

I’m not sure if anyone has any similar experiences like me, but my whole life has been turned upside down, I’ve missed out on doing so many things, and I’ve lost a ton of friends because of this. Some friends they were huh? I feel like I am not able to and never will find success in life, let alone ever own a house or have kids or anything normal happy people can do. I don’t know who to talk to about this, as all my “friends” and even most family have given up on me, don’t understand GBS, and have left me. It also affects me in public or at work because no one understands GBS, and it can be invisible. So I just look lazy taking the elevator or using a handicap space, even though I need it. I’m sorry, I’m just really frustrated and down about this and looking to see if anyone has had any similar issues. Thanks.