Newbie here: CIDP and Covid-19 question

    • May 13, 2022 at 11:55 am

      Diagnosed with CIDP a couple of months ago and just completed my second infusion. I’ve had slowly increasing nephropathy for about four years. Last August, I contracted Covid. I had been doubly vaccinated, but was hit surprisingly hard and have had symptoms, especially “brain fog,” ever since. Then, in November, my nephropathy symptoms starting increasing at a much faster rate. Now I have hand tremors and have lost enough balance that is it quite noticeable. Anyway, my question concerns the how CIDP and Covid are known to interact. I wonder, for example, if my preexisting CIDP explains why I had such a strong case of Covid that in some key ways persists to this day, or whether Covid has made my CIDP worse. I would be grateful for any information/insight you might be able to share. Thanks!

    • May 14, 2022 at 7:47 am

      I had similar symptoms years ago. I/It was much worse than it is now. Along with CIDP, I had and was battling with Lyme, I had 3 different types of tick born bacteria. Have you been tested for Lyme? Go to a Lyme specialist.

    • May 23, 2022 at 2:09 am

      I was first diagnosed (via nerve biopsy) with CIDP about 30 years ago. When I contracted COVID in Dec of 2020, the only thing that happened (except for a positive pcr test, of course), was that I lost my sense of smell. Not even my sense of taste ever went away.

      I would be surprised to find anything other than anecdotal correlation between the COVID-19 virus and autoimmune CIDP.

    • May 30, 2022 at 3:49 pm

      Thanks so much for the replies. Greatly appreciated.