hematocrit is low

    • Ausvoltz
      May 14, 2021 at 5:08 am

      Hi I have a new thing happening my hematocrit levels are 50 after IVIG but in 4 days they have dropped to 32 which is low. I am asking if anyone else is/has experienced this I am getting tired and grumpy when this drop occurs, my specialist and doctor are unsure at this point in time.

    • Ron Brunelle
      May 14, 2021 at 7:39 am

      I’m not exactly sure what the low hematocrit levels indicate, myself I become anemic when I receive my infusion. I have to remember to take iron vitamins before and during my infusion treatments.

      • Ausvoltz
        May 14, 2021 at 7:52 am

        Hi Ron thanks for replying,hematocrit are the amount of red blood cells. My ferritin levels are nearly double the normal range which isn’t good but my iron level is normal.

    • Jim-LA
      May 14, 2021 at 3:28 pm

      This sounds similar to my bout with low RBC and anemia. Maybe the following forum post contains some helpful insight into what could be going on:

      Anemia Due To CIDP?

      • Ausvoltz
        May 14, 2021 at 4:58 pm

        Thanks Jim, yes seems similar to your experience. Will have to talk more about this to my doctor. How have you been going?

    • Paul Buehler
      June 19, 2021 at 3:20 pm

      my doctor just changed my IVIG frequency because my WBC and platelet count kept going low afterward. My hematocrit also dropped but stayed just in the low normal range. He said it could be the IVIG was somehow suppressing my bone marrow or I was having some type of autoimmune reaction to the IVIG. Now that I’ve spread my treatments out my levels drop afterward but stay in the low normal range.