Digestion problems related to cidp

    • September 27, 2016 at 12:20 am

      Hey everybody recently I’ve been dealing with quite a lot of abdominal and back pain especially after eating a meal no matter the size, I have had a history with Gerd before I was diagnosed with cidp but everything just feels quite different, I had an ultrasound/CBC that showed all my digestion organs to be in normal good shape from that standpoint but these pains just feel like nothing I’ve ever had. Just wanted to know if cidp has ever played in your digestion and did it improve over time?

      Funny enough my neuropathy in my legs has improved and fasciculations (finger twinching) in my hands have lessen quite a bit but this just seems to be a new issue.


    • September 27, 2016 at 5:45 pm

      My GBS/CIDP started in the belly. It went on for several months and began to affect the bowels too. I believe my case of the disease was food born. Then the paralysis cut in and I became numb around the waist. It went up and down from there. The pain that came with it was more of a dull pain for me and would become worse when I became constipated from time to time.

      This stomach-intestinal stage of my illness lasted about 6 months in total (3 before and 3 after GBS treatments started). It’s been gone for years now.

      How long have you had the disease and your new symptoms?

      • September 28, 2016 at 11:18 pm

        Thanks Jim!

        Well I was diagnosed CIDP back in march and so far my legs and arms were just being affected at the time and I also suffer with a small CSF leak that I hope to have fixed this week with a Blood Patch. Last month I got a stomach Ulcer from the meds and caffeine if I had to guess but right now my nerves seem to be going off in my back after I eat and I’m having side stitch pain when I do like a flanking motion. So I can’t really tell what might be the worst player in this mess.

        I will start Prednisone next week and I hope it will help and not make this worse.