Deep Vein Thrombosis (due to IVg & Cortisone?)

    • March 24, 2016 at 8:29 am


      I was diagnosed with CIDP some 10 months ago, and six months ago started IVg treatment, originally coupled with Cortisone.

      However shortly afterwards I suffered from a Deep Vein Thrombosis in my right ankle, which my specialist told me could happen due to the combination of drugs.

      Since that time we have dropped the Cortisone, and gone ahead with he IVg, but apart from after the first treatment (with Cortisone), the subsequent ones (without) have shown little effect on my CIDP.

      Has anyone else suffered similarly?

      I’m now wondering if I should not look to stop the IVg, and just take the Cortisone drug?

      Has anyone else tried this?

      During the course of my treatment over the past months, the CIDP has move into my hands/fingers, so it does seem to be progressing.


    • March 24, 2016 at 3:54 pm

      Some of us, like me, seem to have less benefit from IVIg. What worked best for my CIDP was Plasma Exchange. Perhaps you should discuss this approach with your doctor to learn if it might benefit you. Rituxan is another possible treatment you may wish to explore. Prednisone, or other corticosteroids, offer yet another treatment approach. To learn more about these options, do a keyword search in the Forums.