coimbra protocol treatment

    • Wafa
      June 22, 2019 at 5:00 am

      Hi every one;

      Im on CIDP for almost 3 years .I already experience many treatment lines such as igiv and medicines .

      But now im on plasma pherisis .i feel better but numbness feelings still not changed .

      I have read about ” coimbra protocol “=giving patients with autoimmune diseases with high doses of vitamin D under specialists .

      I m wondering if some one try or heard about this treatment line ?!!

      I would be grateful to hear from u

      Kind Regards

    • Jim-LA
      June 22, 2019 at 3:09 pm

      Although some have reported favorable results from high dose vitamin D, the protocol has not yet been scientifically proven. The clinical trial is still in-process and isn’t expected to be complete until 2021. You can follow it here:
      https://clinicaltrials.gov/ct2/show/NCT01490502?term=high+dose+vitamin+D&cond=Multiple+Sclerosis&cntry=US&rank=2

      Some cautionary info about high dose D can be found in the following Healthline article:
      https://www.healthline.com/nutrition/vitamin-d-side-effects

      Other protocols have been discussed in these forums and the following may contain useful info for those seeking something other than IVIg or Plasma Exchange:

      Nerve Regeneration Protocol

      Can CIDP Cause HIGH Vitamin B-12 Value

    • Wafa
      June 24, 2019 at 4:48 am

      Hi;

      Thank u Jim ;

      True! It may not have been scientifically proven, but I think it is a good experience to have successful clinical trials.

      I read the topics you were discussed. Your scientific-based response convinced me .

      And I notice you mentioned stem cells. Are there really centers that proved successful results , especeally all we agree its high cost, but we also see unfortunatly who use them for commercial purposes?

      Thank u again for sharing ur background and experience .

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