CIDP – terrible pain in both my legs.

    • Sheba
      June 29, 2017 at 3:14 pm

      Hello, my name is Bonnie and I have CIDP. I go for IVIG every month since December of 2016. My feet kill me all the time and isn’t getting any better. My legs suddenly started hurting 24 hours a day. The pain is incredible. Can anyone give me advice.

    • Jim-LA
      June 29, 2017 at 4:10 pm

      Have you tried Gabapentin (Neurontin) or Pregabalin (Lyrica) for your pain? Others on this forum have said Lyrica worked better than Neurontin for their GBS/CIDP. Some have reported relief using Amitriptyline (Elavil). Epidural injections or peripheral nerve blocks may be needed in some cases to help relieve sever pain. If you can, research a pain center that has experience treating pain associated with peripheral neuropathy. See this link for some pain center ideas at a “GBS-CIDP center of excellence”:http://www.cedars-sinai.edu/Patients/Programs-and-Services/Pain-Center/index.aspx

      For some more thoughts on pain management please search the forums for “pain” or read the following thread:
      https://forum.gbs-cidp.org/topic/pain-management-help

      If muscle cramping is sometimes an issue for you, maybe you can get some advice here:
      http://forum.gbs-cidp.org/topic/muscle-cramping

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