CIDP and chemo

    • August 7, 2019 at 11:14 pm

      My husband just had surgery for colon cancer and he is now getting the same nerve issues he had before when he had CIDP 15 years ago. He will be starting chemo in a few weeks, has anyone ever had chemo with cidp? Is that bad will it make it worse or better? thanks

    • August 8, 2019 at 10:09 pm

      Todays so-called chemo drugs are very different from those older drugs that have caused hair to fallout and other such symptoms. Do you know the name of the chemo drug? I bet it ends in MAB.

      I had chemo for my non-Hodgkin’s lymphoma using Rituximab. Did you know that the name of this drug isn’t random? It is defined by the World Health Organization: Rituximab is made up of RI the unique name, TU the target (misc. tumor), and XI the source (chimeric) and MAB=monoclonal antibody. The MAB category of drugs is the latest scientific breakthrough and has produced Rituximab and Pembrolizumab (Keytruda – the Jimmy Carter miracle cancer drug). Learn more about MAB’s here:

      MAB drugs are bio-engineered to target specific cells. Yes, some may have side-effects for some people. But the risk of triggering a CIDP relapse is pretty small, depending on the drug.

    • August 9, 2019 at 11:31 am

      Hi and thanks for the reply. The chemo isn’t for the CIDP it is for the colon cancer, it is folfox. With this some of the side affects are neuropathy and so we are afraid that it will make his cidp worse. His oncologist said that chemo can actually help cidp but not sure if all kinds do.

    • August 9, 2019 at 12:24 pm

      I am not an oncologist and not familiar with many cancer drugs. But it seems that Folfox may have more side effects than the drug Bevacizumab. Bevacizumab treats Colorectal cancer that has metastasized. You may wish to ask your doctor about it to help you and your husband make an informed decision. If nothing else, you will have learned more about treatment options. Here is some info about Bevacizumab:

    • August 9, 2019 at 8:03 pm

      Thank you, we saw the neurologist today and she is going to talk with the oncologist about exactly what chemo he will on to see if it will be ok or not. I feel so bad for him, 2 horrible things at the same time.