Any one diagnosed with DADS-I? Or Poems Syndrome?

    • Anonymous
      December 15, 2009 at 11:33 pm

      Hi, I am new to the group and wondering if any of you have been diagnosed with CIDP-sub type- Dystal Aquired Demyelinating Syndrome Ideopathic?

      Also any one wrongly diagnosed with CIDP and now told they have POEMS Syndrome?

    • Tamme Cowan
      November 6, 2019 at 3:59 pm

      I was diagnosed with DADS one year ago. Your post is so old now I’m wondering if you will get my reply
      If you do that would be great.

    • Jim-LA
      November 6, 2019 at 5:23 pm

      One of the experts on Distal Acquired Demyelinating Symmetric neuropathy (DADS) is located in LA at Cedars-Sinai, a Center of Excellence. Here is his latest article that covers the variant:
      https://www.uptodate.com/contents/chronic-inflammatory-demyelinating-polyneuropathy-etiology-clinical-features-and-diagnosis

    • Sean Burke
      March 17, 2021 at 9:57 pm

      I was told I have the DADS variant today. Based on my blood results, further testing needs to be done to see if I have melanoma apparently.

    • Tamme Cowan
      March 18, 2021 at 8:57 am

      I’m diagnosed with DADS Anti-MAG. After endless hours of research I found out about a Facebook group called Neuropathie Anti-MAG. It is composed of only people with this extremely rare condition from around the world. The best information and some awesome people. There are less than 100 people in the group. This is where you need to be. Collectively, you will learn what you need to know. If I can help further please let me know. Tamme

    • Jim-LA
      March 18, 2021 at 10:22 pm

      I believe the group Tamme is referring to is here:
      https://www.facebook.com/groups/1592338124143555/?ref=bookmarks

    • Sean Burke
      March 19, 2021 at 1:29 am

      Tamme & Jim, thank you so much. I will visit and try to join the group, as I need all the info I can get with regards to DADS.

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