Hi Lori,
When I saw your post my thoughts were “Oh:) Dell is walking. That was such wonderful news to hear.

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Hello Lori,
I know that the flu shot caused my CIDP to be very severe because I was in the very early stages of the syndrome (I wasn’t diagnosed yet, I didn’t know what I had). I DO NOT KNOW IF THE FLU SHOT CAUSED MY CIDP. I choose NOT to have the flu shot anymore because I just don’t know what it will do to me. It’s the “unknown”, that’s why I don’t get it. And except for this syndrome, my family doctor agrees with me that I am a healthy person. I don’t even remember when the last time was that I was sick or had a cold.

I hope that you are also going to ask Dell’s neurologist what his/her opinion is. I was at the symposium and several of the doctor’s on “ask the experts” panel agreed that the flu shot is safe. Cindy (CIDPkid) was there, maybe she will reply and give her opinion. I had a very good neurologist and he was my only doctor who said it was better to get the flu shot then have full blown flu.

You and your family are going to have to decide what is best for Dell.

Hello Lori,
We are all saying a prayer for Dell, just look at the responses you are getting. Your child has become our child too.
From my heart,
Liz